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罕见病患者接触登记处的自动化通信系统:留住潜在临床研究参与者的工具。

An automated communication system in a Contact Registry for persons with rare diseases: tools for retaining potential clinical research participants.

作者信息

Richesson Rachel L, Young Ken, Lloyd Jennifer, Adams Tim, Guillette Heather, Malloy Jamie, Krischer Jeffrey P

机构信息

Pediatrics Epidemiology Center, University of South Florida College of Medicine, Tampa, FL, USA.

出版信息

AMIA Annu Symp Proc. 2007 Oct 11:1094.

PMID:18694191
Abstract

Strategies to enhance recruitment are useful in clinical research network settings. Our network data center maintains a Contact Registry of patients who express a willingness to be contacted to enroll in clinical studies. An automated system generates periodic and customized communications to notify registrants of potential studies and network events. The majority of these communications are sent by email, although the system also supports postal communications. A database tracks the sending of all communications and facilitates reports of registry activity.

摘要

加强招募的策略在临床研究网络环境中很有用。我们的网络数据中心维护着一个联系登记册,登记那些表示愿意被联系以参加临床研究的患者。一个自动化系统会定期生成定制化的通信,通知登记者潜在的研究和网络活动。这些通信大部分通过电子邮件发送,不过该系统也支持邮政通信。一个数据库跟踪所有通信的发送情况,并便于生成登记活动报告。

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