Waldron-Perrine Brigid, Rapport Lisa J, Ryan Kelly A, Harper Kaja Telmet
Wayne State University, Detroit, MI 48202, USA.
Clin Neuropsychol. 2009 Apr;23(3):462-78. doi: 10.1080/13854040802279683. Epub 2008 Aug 18.
Research on life satisfaction among caregivers of persons with multiple sclerosis (MS) is sparse. This study examined the extent to which MS-specific disease and psychosocial characteristics predict caregiver life satisfaction. Participants were 64 caregivers of patients with MS and the patients for whom they care. Multiple regression analysis indicated that caregiver perception of illness uncertainty and patients' unawareness of deficits have unique value in predicting caregiver life satisfaction, even after accounting for general financial status. Gender and level of social support were also important contributing factors to caregiver life satisfaction. The findings suggest that duration and severity of the patients' illness take a greater toll on life satisfaction of caregivers with low versus high social support, particularly among women caregivers.
关于多发性硬化症（MS）患者照料者生活满意度的研究较为匮乏。本研究考察了特定于MS的疾病及心理社会特征在多大程度上能够预测照料者的生活满意度。研究参与者为64名MS患者的照料者及其所照料的患者。多元回归分析表明，即使在考虑了总体财务状况之后，照料者对疾病不确定性的感知以及患者对自身缺陷的 unaware （此处原文有误，推测可能是“unawareness”，译为“未意识到”）在预测照料者生活满意度方面具有独特价值。性别和社会支持水平也是影响照料者生活满意度的重要因素。研究结果表明，患者疾病的持续时间和严重程度对社会支持水平低的照料者的生活满意度造成的影响大于社会支持水平高的照料者，尤其是在女性照料者中。
