Broussard Anne Bienvenu, Borazjani June G
College of Nursing and Allied Health Professions, University of Louisiana at Lafayette, Louisiana, USA.
MCN Am J Matern Child Nurs. 2008 Sep-Oct;33(5):272-8; quiz 279-80. doi: 10.1097/01.NMC.0000334892.45979.d5.
Moebius syndrome is a rare congenital disorder characterized mainly by the inability to move the eyes laterally or produce facial expressions such as smiling. Moebius syndrome creates physical problems for the affected individual that may, in some cases, lead to emotional or social adjustment issues, yet the syndrome is relatively unknown among healthcare professionals. Because early recognition of Moebius syndrome can lead to early diagnosis and treatment, education of nurses in perinatal, pediatric, midwifery, and neonatal specialties is crucial. Through early recognition, maternal-child nurses can offer anticipatory guidance and provide or recommend resources to parents of children with this neurological condition.
梅比厄斯综合征是一种罕见的先天性疾病,主要特征为无法向外侧移动眼球或做出诸如微笑等面部表情。梅比厄斯综合征给受影响的个体带来身体问题,在某些情况下可能导致情绪或社会适应问题,然而该综合征在医疗保健专业人员中相对不为人知。由于早期识别梅比厄斯综合征可导致早期诊断和治疗,因此对围产期、儿科、助产和新生儿专业的护士进行教育至关重要。通过早期识别,母婴护士可以提供预期指导,并为患有这种神经系统疾病的儿童的父母提供或推荐相关资源。