Boivin Antoine, Légaré France, Lehoux Pascale
Scientific Institute for Quality of Healthcare, Radboud University Nijmegen Medical Centre, Netherlands.
Patient Educ Couns. 2008 Dec;73(3):426-30. doi: 10.1016/j.pec.2008.07.017. Epub 2008 Sep 6.
Describe some of the implicit normative and value judgments made in decision technologies development and use.
Using conceptual analysis of published models, we first outline some of the background assumptions of the knowledge translation/evidence-based medicine view of decision technologies. We then describe how normative judgments are embedded in decision technology development and use, drawing from empirical normative analysis of qualitative interviews with clinical practice guidelines developers (n=18) and users (n=17) in Canada and the UK.
Normative judgments are made in at least three stages of decision technologies' "life cycle": (1) in the identification of contexts where decisions are seen as requiring support; (2) in determining what type of information and options should be part of the content of decision technologies; (3) in the negotiation between different actors regarding how effectiveness of decision technologies should be judged. These findings contrast with the knowledge translation/evidence-based medicine picture of decision technologies as neutral carriers of facts, or 'pure' synthesis of research evidence.
Normative judgments are at play throughout the life cycle of decision technology development and use. References to scientific notions of truth and validity in the knowledge translation/evidence-based medicine model tend to overlook the socio-political dimension of decision technology development and implementation, as well as the contested nature of what "good decision" these technologies aim to support.
Empirical normative analysis is an important research tool to better understand the values, interests and power relationships embedded in decision technologies. Such lines of inquiry could foster a more open debate among stakeholders - including patients and members of the public - regarding the norms promoted by practice guidelines and patient decision aids. It also offers new insights in understanding the problem of implementing decision technologies in clinical practice.
描述决策技术开发与使用过程中所做出的一些隐含的规范性和价值判断。
通过对已发表模型的概念分析,我们首先概述决策技术的知识转化/循证医学观点的一些背景假设。然后,我们借鉴对加拿大和英国临床实践指南制定者(n = 18)和使用者(n = 17)进行定性访谈的实证规范性分析,描述规范性判断是如何嵌入决策技术的开发与使用之中的。
规范性判断至少在决策技术“生命周期”的三个阶段做出:(1)在确定被视为需要支持的决策背景时;(2)在确定何种类型的信息和选项应成为决策技术内容的一部分时;(3)在不同行为者之间就应如何判断决策技术的有效性进行协商时。这些发现与将决策技术视为事实的中立载体或研究证据的“纯粹”综合的知识转化/循证医学观点形成对比。
规范性判断在决策技术开发与使用的整个生命周期中都发挥着作用。知识转化/循证医学模型中对科学的真理和有效性概念的提及往往忽视了决策技术开发与实施的社会政治层面,以及这些技术旨在支持的“良好决策”的争议性质。
实证规范性分析是一种重要的研究工具,有助于更好地理解决策技术中所蕴含的价值观、利益和权力关系。这样的探究思路可以促进包括患者和公众在内的利益相关者之间就实践指南和患者决策辅助工具所倡导的规范展开更开放的辩论。它还为理解在临床实践中实施决策技术的问题提供了新的见解。