Ranerup Agneta, Sparud-Lundin Carina, Koinberg Ingalill, Skärsäter Ingela, Jenholt-Nolbris Margaretha, Berg Marie
Department of applied IT, University of Gothenburg, 412 96 Gothenburg, Sweden ; Centre for Person-Centred Care (GPCC), University of Gothenburg, Box 457, 405 30 Gothenburg, Sweden.
Centre for Person-Centred Care (GPCC), University of Gothenburg, Box 457, 405 30 Gothenburg, Sweden ; Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg, Box 457, 405 30 Gothenburg, Sweden.
Int J Chronic Dis. 2014;2014:603047. doi: 10.1155/2014/603047. Epub 2014 Mar 19.
Objective. The aim of this study was to provide a critical understanding of the role of theories and their compatibility with a person-centered approach in the design and evaluation of web-based support for the management of chronic illness. Methods. Exploration of web-based support research projects focusing on four cases: (1) preschool children aged 4-6 with bladder dysfunction and urogenital malformation; (2) young adults aged 16-25 living with mental illness; (3) women with type 1 diabetes who are pregnant or in early motherhood; and (4) women who have undergone surgery for breast cancer. Data comprised interviews with research leaders and documented plans. Analysis was performed by means of a cross-case methodology. Results. The used theories concerned design, learning, health and well-being, or transition. All web support products had been developed using a participatory design (PD). Fundamental to the technology design and evaluation of outcomes were theories focusing on learning and on health and well-being. All theories were compatible with a person-centered approach. However, a notable exception was the relatively collective character of PD and Communities of Practice. Conclusion. Our results illustrate multifaceted ways for theories to be used in the design and evaluation of web-based support.
目的。本研究的目的是深入理解理论在基于网络的慢性病管理支持设计与评估中的作用及其与人本位方法的兼容性。方法。对基于网络的支持研究项目进行探索，重点关注四个案例：（1）4 - 6岁患有膀胱功能障碍和泌尿生殖系统畸形的学龄前儿童；（2）患有精神疾病的16 - 25岁青年成年人；（3）怀孕或处于孕早期的1型糖尿病女性；以及（4）接受过乳腺癌手术的女性。数据包括对研究负责人的访谈和记录在案的计划。采用跨案例方法进行分析。结果。所使用的理论涉及设计、学习、健康与幸福或过渡。所有网络支持产品均采用参与式设计（PD）开发。技术设计和结果评估的基础是关注学习以及健康与幸福的理论。所有理论均与人本位方法兼容。然而，一个显著的例外是PD和实践社区相对集体性的特征。结论。我们的结果说明了理论在基于网络的支持设计与评估中使用的多方面方式。
