Unger Wendy R, Buelow Janice M
School of Nursing, Indiana University, Indianapolis, IN 46202, USA.
Epilepsy Behav. 2009 Jan;14(1):89-95. doi: 10.1016/j.yebeh.2008.09.002. Epub 2008 Oct 1.
The objective of this study was to analyze and define the concept of self-management for adults diagnosed with epilepsy in the previous 12 months. Using the hybrid concept analysis method, we analyzed the concept of self-management as used in literature and as described by patients. The three phases of a hybrid concept analysis are theory, fieldwork, and analysis. Patient perceptions of the concept were elicited in the fieldwork phase via semistructured interviews. Qualitative content analysis was used to analyze both theoretical and fieldwork phase data. The analysis yielded 12 themes regarding the participants' self-management experiences that were organized under three main, interactive themes: emotional and physical comfort, functional ability, and self-management actions and behaviors. A conceptual framework and definition of self-management also emerged. We conclude that the patients in this population have unique self-management experiences, and an understanding of those needs allows health care providers to devise and utilize interventions to assist those patients in self-managing their epilepsy. Additional research is needed to investigate self-management further in this population.
本研究的目的是分析和界定过去12个月内被诊断为癫痫的成年人的自我管理概念。我们采用混合概念分析法，分析了文献中以及患者所描述的自我管理概念。混合概念分析的三个阶段分别是理论、实地调查和分析。在实地调查阶段，通过半结构化访谈获取患者对该概念的认知。采用定性内容分析法对理论和实地调查阶段的数据进行分析。分析得出了12个关于参与者自我管理经历的主题，这些主题归纳在三个主要的、相互作用的主题之下：情绪和身体舒适度、功能能力以及自我管理行动和行为。同时还形成了一个自我管理的概念框架和定义。我们得出结论，该人群中的患者有独特的自我管理经历，了解这些需求能使医疗服务提供者设计并利用干预措施来帮助这些患者自我管理癫痫。需要进一步开展研究，以对该人群的自我管理进行更深入的调查。
