Jia Lingying, Hu Yan
School of Nursing, Fudan University, Shanghai, People's Republic of China.
Patient Prefer Adherence. 2022 Sep 23;16:2663-2681. doi: 10.2147/PPA.S379435. eCollection 2022.
This study aims to describe the experience and connotations of self-management about adjuvant therapy (AT) in Chinese breast cancer survivors (BCS) and explore possible factors that affect their self-management level.
Semi-structured interviews were conducted in postoperative BCS undergoing AT using a qualitative description method. The conceptual structure and connotations were extracted after researchers collected and coded interview transcripts.
After interviewing 29 patients, the conceptual framework of self-management in BCS during AT was optimized with three major themes: medical-related, emotion, and role management. Medical-related management includes AT-related adverse reactions; medical cooperation and knowledge acquisition; recovery and protection of affected limb; medical compliance; body image; sexual function and fertility; healthy lifestyle; catheter daily protection; and AT-related financial burdens. Emotion management includes recognition, prevention, and regulation of negative emotions. Role management consists of three aspects: family role, social role, and work role.
The conceptual structure and connotations formed in this study can help researchers to evaluate and intervene in the self-management ability of BCS during AT, so as to formulate the best model of care to improve their quality of life and clinical outcomes.
本研究旨在描述中国乳腺癌幸存者辅助治疗(AT)自我管理的经历和内涵,并探讨影响其自我管理水平的可能因素。
采用定性描述方法,对接受辅助治疗的术后乳腺癌幸存者进行半结构化访谈。研究人员收集并编码访谈记录后,提取概念结构和内涵。
在对29例患者进行访谈后,优化了乳腺癌幸存者辅助治疗期间自我管理的概念框架,包括三个主要主题:医疗相关、情感和角色管理。医疗相关管理包括辅助治疗相关不良反应;医疗合作与知识获取;患侧肢体的恢复与保护;医疗依从性;身体形象;性功能与生育能力;健康生活方式;导管日常保护;以及辅助治疗相关经济负担。情感管理包括负面情绪的识别、预防和调节。角色管理包括三个方面:家庭角色、社会角色和工作角色。
本研究形成的概念结构和内涵有助于研究人员评估和干预乳腺癌幸存者辅助治疗期间的自我管理能力,从而制定最佳护理模式,提高其生活质量和临床结局。