Jackson Cath, Cheater Francine M, Reid Innes
School of Healthcare, University of Leeds, Leeds, UK.
Health Expect. 2008 Sep;11(3):232-51. doi: 10.1111/j.1369-7625.2008.00496.x.
To identify the decision support needs of parents attempting to make an informed health decision on behalf of a child.
The first step towards implementing patient decision support is to assess patients' information and decision-making needs.
A systematic search of key bibliographic databases for decision support studies was performed in 2005. Reference lists of relevant review articles and key authors were searched. Three relevant journals were hand searched.
Non-intervention studies containing data on decision support needs of parents making child health decisions.
Data were extracted on study characteristics, decision focus and decision support needs. Studies were quality assessed using a pre-defined set of criteria. Data synthesis used the UK Evidence for Policy and Practice Information and Co-ordinating Centre approach.
One-hundred and forty nine studies were included across various child health decisions, settings and study designs. Thematic analysis of decision support needs indicated three key issues: (i) information (including suggestions about the content, delivery, source, timing); (ii) talking to others (including concerns about pressure from others); and (iii) feeling a sense of control over the process that could be influenced by emotionally charged decisions, the consultation process, and structural or service barriers. These were consistent across decision type, study design and whether or not the study focused on informed decision making.
确定代表孩子做出明智健康决策的家长的决策支持需求。
实施患者决策支持的第一步是评估患者的信息和决策需求。
2005年对关键书目数据库进行了系统检索，以查找决策支持研究。检索了相关综述文章和关键作者的参考文献列表。对三种相关期刊进行了手工检索。
包含关于做出儿童健康决策的家长的决策支持需求数据的非干预性研究。
提取了关于研究特征、决策重点和决策支持需求的数据。使用预先定义的一组标准对研究进行质量评估。数据综合采用英国政策与实践信息及协调中心的方法。
纳入了149项涉及各种儿童健康决策、环境和研究设计的研究。对决策支持需求的主题分析表明了三个关键问题：（i）信息（包括关于内容、传递、来源、时机的建议）；（ii）与他人交流（包括对来自他人压力的担忧）；以及（iii）对可能受情绪化决策、咨询过程以及结构或服务障碍影响其过程的控制感。这些在决策类型、研究设计以及研究是否侧重于明智决策方面都是一致的。
