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青少年特发性关节炎青年患者的教育和职业结局

Educational and occupational outcomes among young adults with juvenile idiopathic arthritis.

作者信息

Gerhardt Cynthia A, McGoron Katie D, Vannatta Kathryn, McNamara Kelly A, Taylor Janalee, Passo Murray, Noll Robert B

机构信息

The Research Institute at Nationwide Children's Hospital, Columbus, OH 43205-2696, USA.

出版信息

Arthritis Rheum. 2008 Oct 15;59(10):1385-91. doi: 10.1002/art.24100.

Abstract

OBJECTIVE

To examine educational and occupational outcomes among young adults with juvenile idiopathic arthritis (JIA) and peers during the transition from adolescence to emerging adulthood.

METHODS

Families were recruited when children with JIA were 8-14 years old. At that time, each child with JIA was matched to a classmate of similar age, sex, and race for inclusion in a comparison group. For the current followup (12.64 years postdiagnosis), 45 participants with JIA, 46 peers, and their parents completed questionnaires soon after the young person's 18th birthday. Disease type and severity were rated by health care providers.

RESULTS

Young adults with JIA and peers were similar on a variety of factors, including family background, scholastic and occupational self-concept, and academic competence. The proportion of participants who graduated from high school, were working, and expressed plans to attend postsecondary education or seek employment was similar between groups. Disease type, initial severity, and time since diagnosis were generally not associated with indices of educational and occupational attainment.

CONCLUSION

Despite the challenge of having a chronic illness, young adults with JIA were similar to peers on numerous educational and occupational outcomes during the transition from adolescence to emerging adulthood. Interventions to assist academic or occupational functioning may not be necessary for all children with JIA, but additional research is needed to identify subgroups at risk for long-term difficulties.

摘要

目的

研究青少年特发性关节炎(JIA)患者及同龄人在从青春期向成年早期过渡期间的教育和职业成就。

方法

在患有JIA的儿童8至14岁时招募家庭。当时,将每名患有JIA的儿童与年龄、性别和种族相似的同学配对,纳入对照组。在本次随访(诊断后12.64年)中,45名JIA患者、46名同龄人及其父母在年轻人18岁生日后不久完成了问卷调查。疾病类型和严重程度由医疗服务提供者评定。

结果

患有JIA的年轻人和同龄人在各种因素上相似,包括家庭背景、学业和职业自我概念以及学业能力。两组中高中毕业、正在工作以及表示计划接受高等教育或寻求就业的参与者比例相似。疾病类型、初始严重程度和诊断后的时间通常与教育和职业成就指标无关。

结论

尽管患有慢性病存在挑战,但在从青春期向成年早期过渡期间,患有JIA的年轻人在众多教育和职业成就方面与同龄人相似。对于所有患有JIA的儿童,可能并非都需要进行有助于学业或职业功能的干预,但需要进一步研究以确定有长期困难风险的亚组。

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