Ungerer J A, Horgan B, Chaitow J, Champion G D
School of Behavioural Sciences, Macquarie University, Department of Pediatrics, Sydney, New South Wales, Australia.
Pediatrics. 1988 Feb;81(2):195-202.
A questionnaire survey of 363 children and young adults with juvenile arthritis was conducted to assess the relations among disease severity, psychosocial functioning, and adjustment in three age groups--primary school, high school, and young adult. Parents were surveyed separately to determine which characteristics of the ill child at different ages most significantly impact the well-being of the family. Indices of psychologic functioning and disease severity were associated with adjustment in the primary school and high school groups, whereas measures of social relationships were strongly associated with adjustment only in the high school group. Relations among measures of psychologic functioning, social relationships, disease severity, and adjustment in young adults were minimal. Level of disease severity was associated with the presence of financial concerns, emotional problems, and physical strain in parents of high school children and young adults. The results emphasize the importance of using a developmental model for understanding the adjustment of individuals with chronic juvenile arthritis and their families.
对363名青少年关节炎患儿和年轻成人进行了问卷调查,以评估疾病严重程度、心理社会功能以及小学、高中和年轻成人这三个年龄组的适应情况之间的关系。分别对家长进行调查,以确定患病儿童在不同年龄的哪些特征对家庭幸福影响最为显著。心理功能指标和疾病严重程度与小学和高中组的适应情况相关,而社会关系指标仅与高中组的适应情况密切相关。年轻成人的心理功能、社会关系、疾病严重程度和适应情况之间的关系微乎其微。疾病严重程度与高中儿童和年轻成人家长的经济担忧、情绪问题和身体压力有关。结果强调了使用发展模型来理解慢性青少年关节炎患者及其家庭适应情况的重要性。