Gahagan Jacqueline, Sweeney Ellen, Worthington Catherine, Perry Darryl, Satzinger Franziska, Rogers Erin
School of Health and Human Performance, Dalhousie University, 6230 South Street, Halifax, Nova Scotia, B3H 3J5, Canada.
Int J Infect Dis. 2008 Nov;12(6):569-72. doi: 10.1016/j.ijid.2008.07.002. Epub 2008 Oct 1.
In recognition of the level of international HIV/AIDS research being conducted by Canadians, the Canadian Association for HIV Research (CAHR), along with its partners, has developed a resource document to assist researchers in identifying and preparing for the unique ethics issues and challenges that may arise during international HIV/AIDS research. Between 2004 and 2007, face-to-face consultations were undertaken with community and government stakeholders, and interviews were conducted with eight prominent HIV/AIDS researchers with international experience to identify key research ethics challenges and structural, cultural, political, social, and economic factors that may impact HIV/AIDS research ethics in resource-limited settings. These challenges and factors served as the basis for the hypothetical ethics issues case scenarios developed for each of the four research tracks. Ethics issues were identified at every stage of the research process. Key contextual issues included: (1) stigma and culturally-embedded conceptualizations of HIV; (2) local and global politics and economics; (3) gender inequities, power dynamics, and sexual roles; and (4) allocation and availability of resources for research and health services. The final document resulting from the consultation process provides a framework for open dialogue on the complex and interconnected ethics issues researchers may experience in the field of international HIV/AIDS research, and contributes to the HIV/AIDS research field by reinforcing the need for high quality and ethically sound research. This document can be found at http://ethics.cahr-acrv.ca/.
鉴于加拿大人开展的国际艾滋病毒/艾滋病研究水平,加拿大艾滋病毒研究协会(CAHR)及其合作伙伴编制了一份资源文件,以协助研究人员识别并应对国际艾滋病毒/艾滋病研究过程中可能出现的独特伦理问题和挑战。2004年至2007年期间,与社区和政府利益相关者进行了面对面磋商,并对八位具有国际经验的知名艾滋病毒/艾滋病研究人员进行了访谈,以确定关键的研究伦理挑战以及可能影响资源有限环境中艾滋病毒/艾滋病研究伦理的结构、文化、政治、社会和经济因素。这些挑战和因素构成了为四个研究领域各自制定的假设性伦理问题案例情景的基础。在研究过程的每个阶段都识别出了伦理问题。关键的背景问题包括:(1)对艾滋病毒的污名化以及文化中根深蒂固的概念;(2)地方和全球政治与经济;(3)性别不平等、权力动态和性角色;(4)研究和卫生服务资源的分配与可得性。磋商过程产生的最终文件为就研究人员在国际艾滋病毒/艾滋病研究领域可能遇到的复杂且相互关联的伦理问题展开公开对话提供了一个框架,并通过强化对高质量和符合伦理规范研究的需求,为艾滋病毒/艾滋病研究领域做出了贡献。该文件可在http://ethics.cahr-acrv.ca/上查阅。