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民用与军事遗传学:后《遗传信息非歧视法案》时代的非歧视政策

Civilian and military genetics: nondiscrimination policy in a post-GINA world.

作者信息

Baruch Susannah, Hudson Kathy

机构信息

The Genetics and Public Policy Center, 1717 Massachusetts Avenue, NW, Suite 530, Washington, DC 20036, USA.

出版信息

Am J Hum Genet. 2008 Oct;83(4):435-44. doi: 10.1016/j.ajhg.2008.09.003.

DOI:10.1016/j.ajhg.2008.09.003
PMID:18940308
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC2561935/
Abstract

Evidence is emerging of a growing societal consensus about appropriate and inappropriate uses of genetic information. The Genetic Information Nondiscrimination Act of 2008 provides new legal protections to Americans by prohibiting the discriminatory use of genetic information by health insurers and employers. Additionally, the United States military recently created new policies for fair use of genetic information in the determination of benefits for servicemen and servicewomen leaving military service. Although critical issues remain, such as the potential for genetic information to be used to deny people other forms of insurance, and how the military will use genetic medicine overall, significant progress has been made.

摘要

关于遗传信息的恰当与不当使用,社会共识正在不断形成。2008年的《遗传信息非歧视法案》为美国人提供了新的法律保护,禁止医疗保险公司和雇主歧视性地使用遗传信息。此外,美国军方最近制定了新政策,以便在确定退役军人福利时公平使用遗传信息。尽管关键问题依然存在,比如遗传信息可能被用于拒绝为人们提供其他形式的保险,以及军方将如何全面使用基因医学,但已经取得了重大进展。

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本文引用的文献

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Keeping pace with the times--the Genetic Information Nondiscrimination Act of 2008.与时俱进——2008年《遗传信息非歧视法案》
N Engl J Med. 2008 Jun 19;358(25):2661-3. doi: 10.1056/NEJMp0803964.
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Genetic discrimination in health insurance: current legal protections and industry practices.健康保险中的基因歧视:当前的法律保护与行业惯例
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Engagement with genetic discrimination: concerns and experiences in the context of Huntington disease.应对基因歧视:亨廷顿舞蹈症背景下的担忧与经历
Eur J Hum Genet. 2008 Mar;16(3):279-89. doi: 10.1038/sj.ejhg.5201937. Epub 2007 Oct 24.
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Genetic exceptionalism and legislative pragmatism.基因例外论与立法实用主义。
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Common genetic liability to major depression and posttraumatic stress disorder in men.男性中重度抑郁症和创伤后应激障碍的共同遗传易感性。
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