Broom Alex, Tovey Philip
University of Newcastle, New South Wales, Australia.
Qual Health Res. 2008 Dec;18(12):1650-61. doi: 10.1177/1049732308326511. Epub 2008 Oct 27.
To date, research on complementary and alternative medicine (CAM) use by cancer patients has tended to provide a "snapshot" of experience, with little attention given to the evolution of experience over time. Drawing on data from solicited diaries, this article examines individual cancer patients' temporal experiences of CAM. Our findings suggest that experiences of CAM are variable over time and space, and furthermore, that the everyday act of "doing CAM" is considerably more problematic than is often reported in face-to-face interview or survey studies. This is explored in relation to the tension between the perceived need for restrictive self-discipline alongside a sense of the emancipatory potential of CAM; the role of CAM therapists in reconceptualizing disease; and the complex interplay between CAM-derived notions of self-healing and acceptance of individual mortality. We argue that an emphasis on the temporality of cancer patients' CAM engagement is necessary to access a more nuanced understanding of the lived experiences of cancer patients.
迄今为止,关于癌症患者使用补充和替代医学(CAM)的研究往往只是对其体验进行“快照”式呈现,很少关注体验随时间的演变。本文利用来自主动提供的日记中的数据,考察了个体癌症患者使用CAM的时间性体验。我们的研究结果表明,CAM的体验在时间和空间上是可变的,此外,“进行CAM”的日常行为比面对面访谈或调查研究中通常报道的要复杂得多。这一点在以下方面进行了探讨:一方面是对严格自律的感知需求与CAM的解放潜力感之间的紧张关系;CAM治疗师在重新界定疾病概念中的作用;以及源自CAM的自我疗愈观念与对个体死亡的接受之间的复杂相互作用。我们认为,强调癌症患者参与CAM的时间性对于更细致入微地理解癌症患者的生活体验是必要的。