Clukey Lory
University of Northern Colorado School of Nursing, Greeley, CO, USA.
Int J Palliat Nurs. 2008 Jul;14(7):316, 318-25. doi: 10.12968/ijpn.2008.14.7.30617.
This qualitative study explored the retrospective perceptions of the anticipatory mourning experience of caregivers who had not received hospice services. Data revealed five major processes that were consistently described by informants: realization; caretaking; presence; finding meaning; and transitioning. Characteristics of each of these processes are described. Study informants provided information about what was helpful to them. The implications for health care providers include: an awareness of changed family roles and relationship attachments that can cause strain on family systems; familiarity with the complex demands on caregivers and their need for accurate information, anticipatory guidance and support resources; professional expertise especially in regard to education about what to expect; a caring presence; and pain and symptom management.
这项定性研究探讨了未接受临终关怀服务的照料者对预期性哀伤经历的回顾性认知。数据揭示了被调查者一致描述的五个主要过程：认知；照料；陪伴；寻找意义；以及过渡。文中描述了这些过程各自的特点。研究中的被调查者提供了对他们有帮助的信息。对医疗保健提供者的启示包括：意识到家庭角色和关系依恋的变化可能给家庭系统带来压力；熟悉照料者面临的复杂需求以及他们对准确信息、预期指导和支持资源的需求；专业知识，尤其是关于预期情况的教育；关怀的陪伴；以及疼痛和症状管理。
