Wiljer David, Urowitz Sara, Apatu Emma, DeLenardo Claudette, Eysenbach Gunther, Harth Tamara, Pai Howard, Leonard Kevin J
University Health Network, 610 University Avenue, 5-973, Princess Margaret Hospital, Toronto, ON M5G 2M9, Canada.
J Med Internet Res. 2008 Oct 31;10(4):e34. doi: 10.2196/jmir.1061.
Providing patients with access to their electronic health records offers great promise to improve patient health and satisfaction with their care, as well to improve professional and organizational approaches to health care. Although many benefits have been identified, there are many questions about best practices for the implementation of patient accessible Electronic Health Records (EHRs).
To develop recommendations to assist health care organizations in providing patients with access to EHRs in a meaningful, responsible, and responsive manner.
A Patient Accessible Electronic Health Record (PAEHR) Workshop was held with nationally and internationally renowned experts to explore issues related to providing patient access to the EHR and managing institutional change.
The PAEHR Workshop was attended by 45 participants who discussed recommendations for the implementation of patient accessible EHRs. Recommendations were discussed under four subject domains: (1) providing patient access to the EHR, (2) maintaining privacy and confidentiality related to the PAEHR, (3) patient education and navigation of the PAEHR, and (4) strategies for managing institutional change. The discussion focused on the need for national infrastructure, clear definitions for privacy, security and confidentiality, flexible, interoperable solutions, and patient and professional education. In addition, there was a strong call for research into all domains of patient accessible EHRs to ensure the adoption of evidence-based practices.
Patient access to personal health information is a fundamental issue for patient engagement and empowerment. Health care professionals and organizations should consider the potential benefits and risks of patient access when developing EHR strategies. Flexible, standardized, and interoperable solutions must be integrated with outcomes-based research to activate effectively patients as partners in their health care.
让患者能够访问其电子健康记录有望极大地改善患者健康状况及对医疗服务的满意度,同时也能改进医疗保健的专业和组织方法。尽管已发现诸多益处,但对于实施患者可访问的电子健康记录(EHRs)的最佳实践仍存在许多问题。
制定相关建议,以协助医疗保健组织以有意义、负责且及时响应的方式让患者能够访问EHRs。
举办了一次患者可访问电子健康记录(PAEHR)研讨会,与会者包括国内和国际知名专家,以探讨与患者访问EHR及管理机构变革相关的问题。
45名参与者参加了PAEHR研讨会,他们讨论了实施患者可访问EHRs的建议。建议在四个主题领域进行了讨论:(1)让患者访问EHR,(2)维护与PAEHR相关的隐私和保密性,(3)患者对PAEHR的教育和引导,以及(4)管理机构变革的策略。讨论聚焦于国家基础设施的必要性、隐私、安全和保密性的明确定义、灵活且可互操作的解决方案以及患者和专业教育。此外,强烈呼吁对患者可访问EHRs的所有领域进行研究,以确保采用基于证据的实践。
患者访问个人健康信息是患者参与和赋权的一个基本问题。医疗保健专业人员和组织在制定EHR策略时应考虑患者访问的潜在益处和风险。灵活、标准化且可互操作的解决方案必须与基于结果的研究相结合,以有效地使患者成为其医疗保健的合作伙伴。