小儿癫痫新诊断对父母的影响：育儿压力与活动模式
The impact of a new pediatric epilepsy diagnosis on parents: parenting stress and activity patterns.
作者信息
Modi Avani C
机构信息
Division of Behavioral Medicine and Clinical Psychology, Center for the Promotion of Adherence and Self Management, MLC-7039, Cincinnati Children's Hospital Medical Center, Cincinnati, OH 45229, USA.
出版信息
Epilepsy Behav. 2009 Jan;14(1):237-42. doi: 10.1016/j.yebeh.2008.10.009. Epub 2008 Nov 26.
The purpose of this study was to compare parenting stress and activity patterns in parents of children with new-onset epilepsy (NOE, n=30) and parents of children without epilepsy (controls, n=29). Participants completed parenting stress measures and Daily Phone Diaries, a cued-recall procedure to track parents through their activities over a 24-h period. No significant differences were found in parenting stress, with the exception of a higher proportion of parents of children with NOE experiencing life stress compared with parents of controls (P<0.05). Results indicated parents of children with NOE spent more time in medical care (F=4.4, P<0.05) and less time in recreation outside of the home (F=5.6, P<0.05) compared with parents of controls. These findings have important implications for family adaptation to a new epilepsy diagnosis.
本研究的目的是比较新发癫痫患儿（NOE，n = 30）的父母与无癫痫患儿的父母（对照组，n = 29）的育儿压力和活动模式。参与者完成了育儿压力测量和每日电话日记，这是一种线索回忆程序，用于在24小时内跟踪父母的活动。育儿压力方面未发现显著差异，但与对照组父母相比，新发癫痫患儿的父母中经历生活压力的比例更高（P<0.05）。结果表明，与对照组父母相比，新发癫痫患儿的父母在医疗护理上花费的时间更多（F = 4.4，P<0.05），而在家外娱乐活动上花费的时间更少（F = 5.6，P<0.05）。这些发现对家庭适应新的癫痫诊断具有重要意义。
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