Kyung Hee University, Department of Nursing, Seoul Republic of Korea.
Sungshin University, Department of Psychology, Seoul, Republic of Korea.
J Pediatr Nurs. 2019 Mar-Apr;45:e73-e78. doi: 10.1016/j.pedn.2018.12.007. Epub 2018 Dec 20.
To examine the possible relationship between parenting stress and quality of life of children with epilepsy together with the mediating effects of family management styles on this relationship.
We conducted a descriptive and exploratory study using data of participants were 93 parents with an epileptic child. Instruments were self-reported questionnaires including the Korean version of the Quality of Life (QOL) in Childhood Epilepsy Questionnaire (K-QOLCE), the Korean version of the Parenting Stress Index (PSI), and the Korean version of the Family Management Measure (FaMM). Six domains of FaMM were clustered into two domains: easy or difficult family management styles. Descriptive and Pearson correlation path analyses were used to analyze the data.
The direct effects of PSI on QOL were not significant (b = -0.21, t = -0.94, p = .349). Indirect effects of PSI through easy family management styles on QOL were significant (b = -0.33, 95% CI = [-0.77, -0.05]). Additionally, two other effects (i.e., indirect effects through difficult family management styles and direct effects) were non-significant. All effects of PSI on QOL were fully mediated through easy family management styles.
Easy family management styles are the most important factor in predicting QOL in childhood epilepsy patients.
Comprehensive intervention programs are recommended for parents and families of epileptic children to promote positive perceptions of the child's life and to increase parental management ability of the child's condition and parental mutuality.
探讨父母养育压力与癫痫患儿生活质量之间的可能关系,以及家庭管理方式在其中的中介作用。
本研究采用描述性和探索性研究设计,共纳入 93 名癫痫患儿的家长作为研究对象。使用的工具包括自我报告问卷,包括儿童癫痫生活质量问卷(K-QOLCE)、父母养育压力指数(PSI)和家庭管理量表(FaMM)的韩文版。将 FaMM 的 6 个领域聚类为两个领域:易于或困难的家庭管理方式。采用描述性和 Pearson 相关路径分析对数据进行分析。
PSI 对 QOL 的直接影响不显著(b= -0.21,t= -0.94,p=.349)。PSI 通过易于管理的家庭管理方式对 QOL 的间接影响显著(b= -0.33,95% CI= [-0.77,-0.05])。此外,其他两个效应(即通过困难家庭管理方式的间接效应和直接效应)不显著。PSI 对 QOL 的所有影响均通过易于管理的家庭管理方式完全中介。
易于管理的家庭管理方式是预测癫痫患儿生活质量的最重要因素。
建议对癫痫患儿的家长和家庭进行全面的干预计划,以促进其对孩子生活的积极认知,并提高其对孩子病情的管理能力和父母之间的相互理解。