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荷兰阿姆斯特丹不同种族背景的母亲和儿童对哮喘的认知

Asthma beliefs among mothers and children from different ethnic origins living in Amsterdam, the Netherlands.

作者信息

van Dellen Q M, van Aalderen W M C, Bindels P J E, Ory F G, Bruil J, Stronks K

机构信息

Department of Paediatric Pulmonology, Emma Children's Hospital, Academic Medical Centre, University of Amsterdam, Meibergdreef 9, 1105 AZ, Amsterdam, the Netherlands.

出版信息

BMC Public Health. 2008 Nov 3;8:380. doi: 10.1186/1471-2458-8-380.

Abstract

BACKGROUND

Doctors and patients hold varying beliefs concerning illness and treatment. Patients' and families' explanatory models (EMs) vary according to personality and sociocultural factors. In a multi-ethnic society, it is becoming increasingly significant that doctors understand the different beliefs of their patients in order to improve patient/doctor communication as well as patient adherence to treatment.

METHODS

Twelve focus groups were formed, consisting of 40 children diagnosed with asthma, as well as 28 mothers of these children. These groups included mothers and children of different ethnicities who were living in Amsterdam, the Netherlands. In order to understand the beliefs that both mothers and children hold regarding asthma and its treatment, the explanatory models were analysed and compared.

RESULTS

Study findings show that mothers and children, regardless of ethnicity and age, have their own EMs. Overall, there is a great deal of uncertainty related to the causes, consequences, problems, and symptoms of asthma and its treatment. It also seems that many concerns and feelings of discomfort are the result of lack of knowledge. For instance, the fact that asthma is not seen as a chronic disease requiring daily intake of an inhaled corticosteroid, but rather as an acute phenomenon triggered by various factors, may be very relevant for clinical practice. This particular belief might suggest an explanation for non-adherent behaviour.

CONCLUSION

A thorough understanding of the mothers' and children's beliefs regarding the illness and its treatment is an important aspect in the management of asthma. Gaining an understanding of these beliefs will provide a foundation for a solid clinician-patient/family partnership in asthma care. Although ethnic differences were observed, the similarities between the mothers' and children's beliefs in this multi-ethnic population were striking. In particular, a common belief is that asthma is considered an acute rather than a chronic condition. In addition, there is a lack of knowledge about the course and the self-management of asthma. Health care providers should be aware of these commonly held beliefs, and this information could be shared in educational programs.

摘要

背景

医生和患者对疾病及治疗有着不同的看法。患者及其家属的解释模型会因个性和社会文化因素而有所不同。在一个多民族社会中,医生了解患者的不同信念对于改善医患沟通以及患者对治疗的依从性变得越来越重要。

方法

组建了12个焦点小组,其中包括40名被诊断患有哮喘的儿童以及这些儿童的28位母亲。这些小组包括居住在荷兰阿姆斯特丹的不同种族的母亲和儿童。为了了解母亲和儿童对哮喘及其治疗的看法,对解释模型进行了分析和比较。

结果

研究结果表明,无论种族和年龄如何,母亲和儿童都有自己的解释模型。总体而言,哮喘及其治疗的病因、后果、问题和症状存在很大的不确定性。似乎许多担忧和不适感是由于知识缺乏导致的。例如,哮喘未被视为需要每日吸入皮质类固醇的慢性疾病,而是被视为由各种因素引发的急性现象,这一事实可能与临床实践密切相关。这种特定的看法可能为不依从行为提供一种解释。

结论

深入了解母亲和儿童对疾病及其治疗的信念是哮喘管理的一个重要方面。了解这些信念将为哮喘护理中稳固的医患/家庭伙伴关系奠定基础。尽管观察到了种族差异,但在这个多民族群体中,母亲和儿童信念之间的相似之处也很显著。特别是,一个共同的信念是哮喘被认为是急性而非慢性疾病。此外,对哮喘的病程和自我管理缺乏了解。医疗保健提供者应该意识到这些普遍持有的信念,并且这些信息可以在教育项目中分享。

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