Moi Asgjerd Litleré, Vindenes Hallvard Andreas, Gjengedal Eva
Section of Nursing Sciences, Department of Public Health and Primary Health Care, University of Bergen, Bergen, Norway.
J Adv Nurs. 2008 Nov;64(3):278-86. doi: 10.1111/j.1365-2648.2008.04807.x.
This paper is a report of a study to describe the injured body of people who have survived a major burn and seeks to understand the essence of their lived experience.
The burden of a burn-injured body, including loss of function, altered appearance and psychological distress, can threaten return to preburn state of life and successful return to society.
Fourteen participants (three women and 11 men; mean age 46 years) who had survived a major burn were interviewed in 2005-2006 an average 14 months after injury. A Husserlian phenomenological approach was adopted.
A new and demanding bodily awareness, disclosing both limitations and potentials, emerged as the essence of the burn survivors' experience of their injured bodies. This was supported by a descriptive structure of the body as telling a new story, being unfamiliar to watch and sense, vulnerable and in need of protection, more present with a variety of nuisances, having brakes on and resisting habitual actions, as well as being insecure when distrusting own abilities. Participants typically experienced losing the familiarity of their bodies as anonymous and unconsciously at hand for all possible actions in everyday life. Significant others served as buffers, extensions of participants' injured bodies, reducing obstacles and insecurity in all aspects of life.
The lived experience of people who have sustained a burn injury should be recognized and valued by nurses in all phases of burn care. Nurses have an important role in facilitating the presence and involvement of family and friends in the recovery and rehabilitation of burn survivors.
本文报告一项研究，旨在描述重度烧伤幸存者的受伤身体状况，并试图理解他们生活经历的本质。
烧伤后身体的负担，包括功能丧失、外貌改变和心理困扰，可能会威胁到恢复到烧伤前的生活状态以及成功回归社会。
2005 - 2006年，对14名重度烧伤幸存者（3名女性和11名男性；平均年龄46岁）进行了访谈，受伤后平均14个月。采用了胡塞尔现象学方法。
一种全新且苛刻的身体意识出现了，它既揭示了局限性也展现了潜力，这成为烧伤幸存者对其受伤身体体验的本质。这得到了对身体的一种描述性结构的支持，即身体讲述着一个新故事，看起来和感觉起来都很陌生，脆弱且需要保护，伴随着各种不适更加凸显，对习惯性动作有所限制并产生抗拒，以及当不信任自己的能力时会感到不安全。参与者通常经历失去身体在日常生活中作为匿名且无意识可随时用于所有可能行动的那种熟悉感。重要他人起到了缓冲作用，是参与者受伤身体的延伸，减少了生活各方面的障碍和不安全感。
烧伤护理各阶段的护士都应认识并重视烧伤患者的生活经历。护士在促进家人和朋友陪伴并参与烧伤幸存者的康复过程中起着重要作用。
