小儿后颅窝肿瘤幸存者：认知结果、干预措施及基于风险的护理
Survivors of pediatric posterior fossa tumors: cognitive outcome, intervention, and risk-based care.
作者信息
Palmer Shawna L, Leigh Laurie
机构信息
Department of Behavioral Medicine, St Jude Children's Research Hospital; Memphis, TN 38105-2794, USA.
出版信息
Eur J Oncol Nurs. 2009 Jul;13(3):171-8. doi: 10.1016/j.ejon.2008.09.002. Epub 2008 Nov 18.
Abstract
Adolescent and young adult survivors of posterior fossa tumors face a wide variety of functional challenges following treatment. The concept of survival needs to include plans to regularly monitor and effectively respond to those patients considered at risk for continued morbidities associated with cancer and its treatment. The nature of impairment experienced by survivors is discussed, including predominant patient- and treatment-related risk factors. A model to respond to the cognitive needs of survivors, including risk-based evaluation and intervention, is proposed. It is imperative for the success of the survivor that a team approach is taken to care. This approach must include improving the awareness and education of teachers and other education specialists who interact with this population of survivors. There is also an obligation to put forth effort in developing and validating efficacious intervention programs.
摘要
后颅窝肿瘤的青少年和青年幸存者在治疗后面临各种各样的功能挑战。生存的概念需要包括对那些被认为有患与癌症及其治疗相关的持续疾病风险的患者进行定期监测和有效应对的计划。文中讨论了幸存者所经历的损伤的性质，包括主要的患者相关和治疗相关风险因素。提出了一个应对幸存者认知需求的模型，包括基于风险的评估和干预。对于幸存者的成功而言，采取团队护理方法至关重要。这种方法必须包括提高与这群幸存者互动的教师和其他教育专家的意识和教育水平。还有义务努力开发和验证有效的干预项目。
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本文引用的文献
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Curr Neurol Neurosci Rep. 2008 Mar;8(2):111-3. doi: 10.1007/s11910-008-0018-x.
2
Differential prefrontal-like deficit in children after cerebellar astrocytoma and medulloblastoma tumor.小脑星形细胞瘤和髓母细胞瘤患儿前额叶样差异缺陷。
Behav Brain Funct. 2008 Apr 15;4:18. doi: 10.1186/1744-9081-4-18.
3
Core neurocognitive functions in children treated for posterior fossa tumors.后颅窝肿瘤治疗儿童的核心神经认知功能。
Neuropsychology. 2008 Mar;22(2):159-68. doi: 10.1037/0894-4105.22.2.159.
4
The impact of limitations in physical, executive, and emotional function on health-related quality of life among adult survivors of childhood cancer: a report from the Childhood Cancer Survivor Study.儿童癌症成年幸存者的身体、执行功能和情绪功能受限对健康相关生活质量的影响：来自儿童癌症幸存者研究的报告
Arch Phys Med Rehabil. 2008 Jan;89(1):128-36. doi: 10.1016/j.apmr.2007.08.123.
5
The education of dyslexic children from childhood to young adulthood.阅读障碍儿童从童年到青年期的教育。
Annu Rev Psychol. 2008;59:451-75. doi: 10.1146/annurev.psych.59.103006.093633.
6
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J Pediatr Psychol. 2007 Oct;32(9):1050-4. doi: 10.1093/jpepsy/jsm063. Epub 2007 Oct 12.
7
Reduction of health status 7 years after addition of chemotherapy to craniospinal irradiation for medulloblastoma: a follow-up study in PNET 3 trial survivors on behalf of the CCLG (formerly UKCCSG).髓母细胞瘤患者在颅脊髓照射基础上加用化疗7年后健康状况下降：代表CCLG（原UKCCSG）对PNET 3试验幸存者的随访研究
J Clin Oncol. 2007 Sep 20;25(27):4239-45. doi: 10.1200/JCO.2006.08.7684.
8
Cerebellar lesion studies of cognitive function in children and adolescents - limitations and negative findings.儿童和青少年小脑病变的认知功能研究——局限性与阴性结果
Cerebellum. 2007;6(3):242-53. doi: 10.1080/14734220701297432.
9
The cerebellum in cognitive processes: supporting studies in children.认知过程中的小脑：对儿童的支持性研究
Cerebellum. 2007;6(3):237-41. doi: 10.1080/14734220701344507.
10
Behavioral and social outcomes in adolescent survivors of childhood cancer: a report from the childhood cancer survivor study.儿童癌症青少年幸存者的行为和社会结局：来自儿童癌症幸存者研究的报告
J Clin Oncol. 2007 Aug 20;25(24):3649-56. doi: 10.1200/JCO.2006.09.2486.
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