Mukhida Karim
Division of Neurosurgery, University of Toronto, Toronto, Ontario.
Paediatr Child Health. 2007 Dec;12(10):859-65. doi: 10.1093/pch/12.10.859.
How do parents cope when their child is ill or dying, and when he or she is experiencing constant pain or suffering? What do parents think of the contributions that medical professionals make to the care of their chronically or terminally ill child? Is it possible for a parent to love a child so much that they wish their child to be dead? The purpose of the present paper is to explore these questions and aspects of the care of chronically or terminally ill children using Mourning Dove's portrayal of one family's attempt to care for their ill daughter. Mourning Dove, a play written by Canadian playwright Emil Sher, was inspired by the case of Saskatchewan wheat farmer Robert Latimer who killed his 12-year-old daughter, Tracy, who suffered with cerebral palsy and had begun to experience tremendous pain. Rather than focusing on the medical or legal aspects of the care of a chronically ill child, the play offers a glimpse into how a family copes with the care of such a child and the effect the child's illness has on the family. The reading and examination of nonmedical literature, such as Mourning Dove, serves as a useful means for medical professionals to better understand how illness affects and is responded to by patients and their families. This understanding is a prerequisite for them to be able to provide complete care of children with chronic or terminal illnesses and their families.
当孩子生病或濒临死亡,以及正在经受持续的痛苦时,父母该如何应对?父母如何看待医疗专业人员为照料他们身患慢性病或绝症的孩子所做出的贡献?有没有可能一位父母爱孩子爱到希望孩子死去?本文的目的是通过莫宁·多夫对一个家庭照料患病女儿的描绘,探讨这些问题以及照料身患慢性病或绝症孩子的相关方面。《莫宁·多夫》是加拿大剧作家埃米尔·舍尔创作的一部戏剧,灵感来源于萨斯喀彻温省的小麦农场主罗伯特·拉蒂默杀害其12岁女儿特蕾西的案件,特蕾西患有脑瘫且开始遭受巨大痛苦。这部戏剧没有聚焦于照料慢性病患儿的医学或法律层面,而是让我们得以一窥一个家庭如何应对照料这样一个孩子,以及孩子的疾病对家庭产生的影响。阅读和审视像《莫宁·多夫》这样的非医学文献,是医疗专业人员更好地理解疾病如何影响患者及其家庭以及他们如何应对疾病的有用途径。这种理解是他们能够为身患慢性病或绝症的孩子及其家庭提供全面照料的先决条件。