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“搁置的生活”:从长期视角看青少年的干细胞移植经历

'A life on hold': adolescents' experiences of stem cell transplantation in a long-term perspective.

作者信息

Forinder Ulla, Posse Ebba

机构信息

Department of Health Social Work, Karolinska University Hospital, Stockholm University, Stockholm, Sweden.

出版信息

J Child Health Care. 2008 Dec;12(4):301-13. doi: 10.1177/1367493508096205.

Abstract

Stem cell transplantation is one of the treatment methods for cancer in children and adolescents which has resulted in a positive outcome. Unfortunately this method of treatment brings with it a number of late effects such as short stature, cognitive effects and infertility. However, a majority of children and adolescents experience a good quality of life. By examining their medical records this study has gained a deeper understanding of the situation for the minority of young people who describe themselves as suffering severe mental distress which they relate to their illness and treatment. The population comprised seven adolescents who sought psychotherapeutic support several years after treatment. They describe how they are affected by the feeling of being different, the loss of contact with friends and their dependence on parents. The study points to the need for long-term psychosocial support for children and adolescents who have undergone stem cell transplantation.

摘要

干细胞移植是儿童和青少年癌症的治疗方法之一,已取得了积极的治疗效果。不幸的是,这种治疗方法会带来一些后期影响,如身材矮小、认知影响和不孕不育。然而,大多数儿童和青少年的生活质量良好。通过查阅他们的病历,本研究对少数自称因疾病和治疗而遭受严重精神困扰的年轻人的情况有了更深入的了解。研究对象包括七名青少年,他们在治疗几年后寻求心理治疗支持。他们描述了自己如何受到与众不同的感觉、与朋友失去联系以及对父母的依赖的影响。该研究指出,对于接受过干细胞移植的儿童和青少年,需要长期的心理社会支持。

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