Björk Maria, Wiebe Thomas, Hallström Inger
Division of Nursing, Department of Health Sciences, Lund University, Lund, Sweden.
J Pediatr Nurs. 2009 Oct;24(5):423-32. doi: 10.1016/j.pedn.2008.01.082. Epub 2008 Jun 20.
The aim was to elucidate families' lived experience during a child's cancer treatment. Interviews were conducted with members of 11 affected families. A hermeneutical phenomenological approach was chosen. "Focus on the ill child-An everyday struggle" emerged as an essential theme. The families' lived experience of daily life was described as "feeling drained," "disrupting family life," "feeling locked up and isolated," "retaining normality," "becoming experts," and "changing perspectives." The result indicates that life during a child's cancer treatment is a taxing period and that the entire family is in need of support to ease their burdens.
目的是阐明家庭在孩子癌症治疗期间的生活经历。对11个受影响家庭的成员进行了访谈。采用了解释现象学方法。“关注患病儿童——日常挣扎”成为一个关键主题。家庭日常生活的生活经历被描述为“感到疲惫不堪”“扰乱家庭生活”“感到被禁锢和孤立”“保持正常状态”“成为专家”以及“改变观念”。结果表明,孩子癌症治疗期间的生活是一段艰难时期,整个家庭都需要支持以减轻负担。