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探索中度哮喘患儿的健康相关生活质量。

Exploring the health-related quality of life among children with moderate asthma.

作者信息

Chiang Li-Chi

机构信息

School of Nursing, Graduate Institute of Nursing, China Medical University.

出版信息

J Nurs Res. 2005 Mar;13(1):31-40.

Abstract

Asthma is one of the most common chronic diseases, impacting more than 10 % of children in Taiwan. The recurrent signs and symptoms and complexity of disease management impact the life quality of children with asthma. The purpose of this study was to describe the content and dimensions of health-related quality of life (HRQOL) among children with moderate asthma by descriptive qualitative research based on in-depth interviews. Eleven children, aged 6-12 years, and their mothers from two medical centers in central Taiwan were interviewed and tape recorded. The transcripts were analyzed using content analysis. Six themes relevant to the children's QOL with asthma were identified: 1. physical disturbances of signs/symptoms, 2. limitations of activity, 3. emotional distress, 4. discord in parent-child relationships, 5. restrictions in school social life and 6. daily inconvenience of managing the disease. These findings highlight the ways in which the overall quality of life of children is impacted by asthma including the physiological and psychosocial domains. The breadth of these findings may lead to greater insights into the nursing care of children with asthma.

摘要

哮喘是最常见的慢性疾病之一,影响着台湾超过10%的儿童。哮喘反复发作的症状以及疾病管理的复杂性影响着哮喘患儿的生活质量。本研究的目的是通过基于深入访谈的描述性定性研究,描述中度哮喘患儿健康相关生活质量(HRQOL)的内容和维度。对来自台湾中部两个医疗中心的11名6至12岁的儿童及其母亲进行了访谈并录音。使用内容分析法对访谈记录进行分析。确定了与哮喘患儿生活质量相关的六个主题:1. 体征/症状的身体不适;2. 活动受限;3. 情绪困扰;4. 亲子关系不和谐;5. 学校社交生活受限;6. 疾病管理的日常不便。这些发现突出了哮喘影响儿童总体生活质量的方式,包括生理和心理社会领域。这些发现的广度可能会为哮喘患儿的护理提供更深入的见解。

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