Maurice-Stam Heleen, Silberbusch Lobke M, Last Bob F, Grootenhuis Martha A
Psychosocial Department, Emma Children's Hospital, Academic Medical Center, Amsterdam, The Netherlands.
Psychooncology. 2009 Jul;18(7):762-6. doi: 10.1002/pon.1470.
The present paper reports about the content and evaluation of a psycho-educational group intervention for children growing up with a history of cancer, Op Koers Oncologie (OK Onco). OK Onco is aimed at empowerment of survivors of childhood cancer by teaching disease-related skills. The purpose of this pilot study is to evaluate whether OK Onco was appropriate for use among paediatric survivors of childhood cancer.
Eleven participating children and their parents completed questionnaires about the disease-related skills that were taught in the intervention, before the intervention and 0-4 weeks after the intervention. In addition, parents were interviewed in focus groups.
Positive outcomes were found on most items concerning disease-related skills. Remarkable improvements were found with respect to the intervention goals 'social competence' and 'positive thinking'. The parents reported that sharing emotions and experiences with other survivors of childhood cancer was an important element of the OK Onco program, which underscores the benefit of a disease-specific program for cancer survivors.
In conclusion, the results of the pilot study indicate that OK Onco is appropriate for paediatric survivors of childhood cancer. Implementation of the intervention is the next challenge.
本文报告了一项针对有癌症病史儿童的心理教育团体干预项目“Op Koers Oncologie(OK Onco)”的内容及评估情况。OK Onco旨在通过教授与疾病相关的技能来增强儿童癌症幸存者的能力。这项试点研究的目的是评估OK Onco是否适合在儿童癌症的儿科幸存者中使用。
11名参与的儿童及其父母在干预前以及干预后0至4周完成了关于干预中所教授的与疾病相关技能的问卷。此外,还对家长进行了焦点小组访谈。
在大多数与疾病相关技能的项目上都发现了积极成果。在干预目标“社交能力”和“积极思考”方面有显著改善。家长们报告说,与其他儿童癌症幸存者分享情感和经历是OK Onco项目的一个重要元素,这凸显了针对癌症幸存者的特定疾病项目的益处。
总之,试点研究结果表明OK Onco适合儿童癌症的儿科幸存者。下一步的挑战是实施该干预措施。