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[癌症治疗开始时与当前状态的差异及可能的后遗症:儿科肿瘤学的一项初步研究]

[Differences in current state and at the beginning of cancer therapy and possible sequelae: a pilot study in pediatric oncology].

作者信息

Kusch M, Labouvie H, Bode U

机构信息

Abteilung für Hämatologie/Onkologie, Universität Bonn.

出版信息

Prax Kinderpsychol Kinderpsychiatr. 1994 Mar;43(3):98-106.

PMID:8197065
Abstract

The psycho-social and medical care of families with a cancer sick child can be more effective if the team can identify those parents who need help most desperately from the very beginning. In a retrospective study of 20 patients and their families two groups of parents with different levels of stress could be seperated. Highly stressed parents demonstrated already at the time of diagnosis unfavorable coping strategies with the possibility of a cancer disease. They experience a high degree of guilt feelings and believe that they might be responsible for the occurrence of the disease. However they refuse more often than the other parents psycho-social help offered by the professionals. The results suggest to implement special kind of help for the more stressed families already in the early phase of diagnosis and treatment.

摘要

如果团队能够从一开始就识别出那些最迫切需要帮助的父母,那么对患有癌症儿童的家庭进行心理社会和医疗护理可能会更有效。在一项对20名患者及其家庭的回顾性研究中,可以区分出两组压力水平不同的父母。压力大的父母在诊断时就表现出应对癌症疾病的不良策略。他们有高度的内疚感,认为自己可能对疾病的发生负有责任。然而,他们比其他父母更频繁地拒绝专业人员提供的心理社会帮助。结果表明,在诊断和治疗的早期阶段,就应为压力更大的家庭提供特殊帮助。

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