Tchervenkov Christo I, Jacobs Jeffrey Phillip, Bernier Pierre-Luc, Stellin Giovanni, Kurosawa Hiromi, Mavroudis Constantine, Jonas Richard A, Cicek Sertac M, Al-Halees Zohair, Elliott Martin J, Jatene Marcelo B, Kinsley Robin H, Kreutzer Christian, Leon-Wyss Juan, Liu Jinfen, Maruszewski Bohdan, Nunn Graham R, Ramirez-Marroquin Samuel, Sandoval Nestor, Sano Shunji, Sarris George E, Sharma Rajesh, Shoeb Ayman, Spray Thomas L, Ungerleider Ross M, Yangni-Angate Hervé, Ziemer Gerhard
Division of Pediatric Cardiovascular Surgery, The Montreal Children's Hospital of the McGill University Health Centre, Montréal, Quebec, Canada.
Cardiol Young. 2008 Dec;18 Suppl 2:63-9. doi: 10.1017/S1047951108002801.
The diagnosis and treatment for paediatric and congenital cardiac disease has undergone remarkable progress over the last 60 years. Unfortunately, this progress has been largely limited to the developed world. Yet every year approximately 90% of the more than 1,000,000 children who are born with congenital cardiac disease across the world receive either suboptimal care or are totally denied care.While in the developed world the focus has changed from an effort to decrease post-operative mortality to now improving quality of life and decreasing morbidity, which is the focus of this Supplement, the rest of the world still needs to develop basic access to congenital cardiac care. The World Society for Pediatric and Congenital Heart Surgery [http://www.wspchs.org/] was established in 2006. The Vision of the World Society is that every child born anywhere in the world with a congenital heart defect should have access to appropriate medical and surgical care. The Mission of the World Society is to promote the highest quality comprehensive care to all patients with pediatric and/or congenital heart disease, from the fetus to the adult, regardless of the patient's economic means, with emphasis on excellence in education, research and community service.We present in this article an overview of the epidemiology of congenital cardiac disease, the current and future challenges to improve care in the developed and developing world, the impact of the globalization of cardiac surgery, and the role that the World Society should play. The World Society for Pediatric and Congenital Heart Surgery is in a unique position to influence and truly improve the global care of children and adults with congenital cardiac disease throughout the world [http://www.wspchs.org/].
在过去的60年里，小儿及先天性心脏病的诊断和治疗取得了显著进展。不幸的是，这一进展在很大程度上仅限于发达国家。然而，全世界每年出生的100多万患有先天性心脏病的儿童中，约90%要么接受的治疗不够理想，要么完全得不到治疗。在发达国家，重点已从努力降低术后死亡率转变为现在提高生活质量和降低发病率，这也是本增刊的重点，而世界其他地区仍需要发展先天性心脏病护理的基本途径。世界小儿及先天性心脏病外科学会[http://www.wspchs.org/]于2006年成立。该学会的愿景是，世界上任何地方出生的患有先天性心脏病的儿童都应能获得适当的医疗和外科护理。该学会的使命是为所有患有小儿和/或先天性心脏病的患者，从胎儿到成人，提供最高质量的综合护理，无论患者的经济状况如何，重点是在教育、研究和社区服务方面追求卓越。在本文中，我们概述了先天性心脏病的流行病学、发达国家和发展中国家改善护理的当前和未来挑战、心脏外科全球化的影响以及世界学会应发挥的作用。世界小儿及先天性心脏病外科学会处于一个独特的位置，能够影响并真正改善全世界患有先天性心脏病的儿童和成人的全球护理[http://www.wspchs.org/]。
