Phillips Elizabeth M, Odunlami Adebola O, Bonham Vence L
National Human Genome Research Institute, NIH.
Soc Forces. 2007 Dec;86(2):795-820. doi: 10.1093/sf/86.2.795.
This article presents the findings of a qualitative study of multiracial individuals' understanding of identity, race and human genetic variation. The debate regarding the correlation between race, genetics and disease has expanded, but limited empirical data has been collected regarding the lay public's perspective. Participants in this study explore their identity and its relationships to their health care interactions. Participants also share their views on race-based therapeutics, health disparities and the connections between race, ancestry and genetics. Their voices highlight the limitations of racial categories in describing differences within our increasingly diverse communities. The genomic era will be a pivotal period in challenging current understandings and uses of racial categories in health.
本文介绍了一项关于多种族个体对身份认同、种族和人类基因变异理解的定性研究结果。关于种族、遗传学和疾病之间相关性的争论已经扩大,但关于普通公众观点的实证数据收集有限。本研究的参与者探讨了他们的身份认同及其与医疗保健互动的关系。参与者还分享了他们对基于种族的治疗方法、健康差异以及种族、血统和遗传学之间联系的看法。他们的声音凸显了种族类别在描述我们日益多样化社区内差异方面的局限性。基因组时代将是挑战当前对健康领域种族类别理解和应用的关键时期。