Crawshaw Marilyn A, Glaser Adam W, Hale Juliet P, Sloper Patricia
Department of Social Policy and Social Work, University of York, York, UK.
Hum Fertil (Camb). 2008 Dec;11(4):238-45. doi: 10.1080/14647270802132752.
Existing research into sperm banking by young males following a cancer diagnosis is predominantly quantitative; little is known about personal experiences, psychosocial and attitudinal barriers to it amongst patients and/or professionals, or the later impact of potential or actual subfertility when banking has or has not taken place. This qualitative study used single in-depth interviews with 16 males aged 13 to 20 at diagnosis (16 to 30 years at interview) to report retrospectively on their experiences, concerns and satisfactions. There was support for sperm banking, including among those who declined to bank or failed to do so successfully. Many reported that, when successful, it eased any later fertility-related concerns by offering a possible alternative route to biological fatherhood. There was satisfaction with levels of understanding, recall and decision making, though lack of clarity about consent conditions. Sperm bank professionals were less likely than oncology staff to achieve good rapport. Improvements to consent arrangements, facilities, written information and sharing of results were suggested. Small numbers from minority ethnic or disabled communities meant that any uniqueness in their experiences could not be identified. While some improvements to the process of sperm banking and follow-up can be acted upon with minimal implications, others may be more complex.
现有关于年轻男性在癌症诊断后进行精子冷冻保存的研究主要是定量研究；对于患者和/或专业人员在这方面的个人经历、心理社会和态度障碍，或者在进行或未进行精子冷冻保存时潜在或实际的生育力低下的后期影响，我们知之甚少。这项定性研究对16名在诊断时年龄为13至20岁（访谈时年龄为16至30岁）的男性进行了单次深入访谈，以回顾性地报告他们的经历、担忧和满意度。精子冷冻保存得到了支持，包括那些拒绝冷冻或未能成功冷冻的人。许多人报告说，成功冷冻后，通过提供成为生物学父亲的可能替代途径，缓解了日后与生育相关的担忧。尽管对同意条件缺乏明确性，但对理解、回忆和决策水平感到满意。与肿瘤学工作人员相比，精子库专业人员不太可能建立良好的融洽关系。有人建议改进同意安排、设施、书面信息和结果共享。少数族裔或残疾群体的人数较少，这意味着无法确定他们经历中的任何独特之处。虽然精子冷冻保存和后续过程的一些改进可以在影响最小的情况下实施，但其他改进可能更复杂。
