Verissimo Ramiro
Medical Psychology, University of Porto Faculty of Medicine, Al Hernani Monteiro 4200-319 Porto, Portugal.
J Gastrointestin Liver Dis. 2008 Dec;17(4):439-44.
BACKGROUND & AIMS: The health related quality of life (HR-QoL) construct was introduced as a requirement to assess the subjective health status. It is a multifaceted construct that has contributed to a better understanding of the patients' adaptation to his condition. The Inflammatory Bowel Disease Questionnaire (IBDQ), a widely used instrument to assess QoL among IBD patients, has already shown its validity and reliability. Our aim was to obtain an easier revised version of the (IBDQ-R) and to investigate its cross-cultural psychometric properties.
Carried out in a sample of outpatients recruited in a specialized University Clinic (n=76), this study began with the translation and linguistic validation of a self-report 32-item version of the questionnaire with a 7-point Likert type answering system. We assessed thereafter its reliability through internal consistencies and also looked into its discriminatory power. We also investigated its convergent validity with other health status - clinical assessment, SCDAI and CDAI-m - and well-being measures.
With a Cronbach's alpha = 0.92 for the global scale and a mean 0.82 for the subscales, internal consistencies proved adequate. On the other hand, discriminatory power was also significant according to the model. Moreover, the expected correlations between IBDQ and the clinical assessment, SCDAI, CDAI-m and perception of well-being support evidence of IBDQ-R's convergent validity.
This IBDQ revised version is a highly promising instrument to easily, yet feasibly and comprehensively, assess the quality of life in inflammatory bowel disease; therefore its use in daily practice is worthy to be recommended.
健康相关生活质量(HR-QoL)这一概念作为评估主观健康状况的一项要求被引入。它是一个多维度的概念,有助于更好地理解患者对自身病情的适应情况。炎症性肠病问卷(IBDQ)是一种广泛用于评估炎症性肠病患者生活质量的工具,已证明其有效性和可靠性。我们的目的是获得一个更简便的修订版(IBDQ-R),并研究其跨文化心理测量特性。
本研究以一家专业大学诊所招募的门诊患者为样本(n = 76),首先对一份32项自填式问卷进行翻译和语言验证,该问卷采用7点李克特式回答系统。之后我们通过内部一致性评估其可靠性,并研究其区分能力。我们还调查了它与其他健康状况——临床评估、简化克罗恩病活动指数(SCDAI)和儿童克罗恩病活动指数(CDAI-m)以及幸福感测量指标之间的收敛效度。
总体量表的克朗巴哈系数(Cronbach's alpha)为0.92,各子量表平均为0.82,内部一致性良好。另一方面,根据模型,区分能力也很显著。此外,IBDQ与临床评估、SCDAI、CDAI-m以及幸福感感知之间的预期相关性支持了IBDQ-R的收敛效度。
这个IBDQ修订版是一种非常有前途的工具,能够轻松、可行且全面地评估炎症性肠病患者的生活质量;因此值得在日常实践中推荐使用。