Janke Karl-Heinz, Klump Bodo, Steder-Neukamm Ulf, Hoffmann Jörg, Häuser Winfried
Medizinische Klinik und Poliklinik, Abteilung Innere Medizin I, Universitätsklinikum Tübingen.
Psychother Psychosom Med Psychol. 2006 Jul;56(7):291-8. doi: 10.1055/s-2006-932661. Epub 2006 May 22.
The Inflammatory Bowel Disease Questionnaire (IBDQ) is the standard disease-specific instrument for assessment of health-related quality of life (HRQOL) in patients with inflammatory bowel diseases (IBD). A German translation has not been validated. 415 outpatient IBD-patients (Crohn's Disease n = 306, Ulcerative Colitis n = 109) completed the German version of the IBDQ (Competence network IBD, IBDQ-D), the Hospital Anxiety and Depression Scale German Version (HADS-D) and the Questions on Life Satisfaction FLZ. Face validity was assessed by a physicians' and patients' panel. Disease activity was measured by the German Inflammatory Bowel Disease Activity Index (GIBDI). With 97.3 % completed items the acceptance was high. The Cronbach's alpha for the subscales ranged from 0.88 to 0.89. The correlation coefficients with comparable subscales of other instruments ranged between 0.09 and 0.70. Patients in remission and different disease activities differed significantly (p < 0.001) in all IBDQ-D-subscales.
炎症性肠病问卷（IBDQ）是评估炎症性肠病（IBD）患者健康相关生活质量（HRQOL）的标准疾病特异性工具。其德文译本尚未经过验证。415名IBD门诊患者（克罗恩病n = 306，溃疡性结肠炎n = 109）完成了IBDQ德文版（IBD能力网络，IBDQ-D）、医院焦虑抑郁量表德文版（HADS-D）以及生活满意度FLZ问题调查。通过医生和患者小组评估表面效度。采用德国炎症性肠病活动指数（GIBDI）测量疾病活动度。问卷项目完成率为97.3%，接受度较高。各分量表的克朗巴哈系数在0.88至0.89之间。与其他工具可比分量表的相关系数在0.09至0.70之间。缓解期患者和不同疾病活动度患者在所有IBDQ-D分量表上差异显著（p < 0.001）。
