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自我报告的不同严重程度四级多重化学敏感性患者的疾病相关功能障碍。

Sickness-related dysfunction in persons with self-reported multiple chemical sensitivity at four levels of severity.

作者信息

Gibson Pamela Reed, Vogel Valerie M

机构信息

Department of Psychology, James Madison University, Harrisonburg, VA 28807, USA.

出版信息

J Clin Nurs. 2009 Jan;18(1):72-81. doi: 10.1111/j.1365-2702.2008.02439.x.

Abstract

AIM

To examine quality of life outcome for persons who self-report chemical sensitivity, often referred to as multiple chemical sensitivity.

BACKGROUND

Multiple chemical sensitivity is poorly understood with few providers specialising in its treatment. This lack of treatment and the ubiquity of chemicals engender severe life impacts such as job loss, financial loss, social isolation and even homelessness for persons who experience these sensitivities.

DESIGN

Survey.

METHOD

We examined chemical incitants, symptoms and sickness-related behavioural dysfunction as measured by the Sickness Impact Profile in 254 persons self-identified with multiple chemical sensitivity.

RESULTS

Chemicals rated as causing the most symptomatology in respondents were pesticide, formaldehyde, fresh paint, new carpet, diesel exhaust, perfume and air fresheners. The five highest rated symptoms in this sample were tiredness/lethargy, difficulty concentrating, muscle aches, memory difficulties and long-term fatigue. Overall mean Sickness Impact Profile score was 25.25%, showing serious impairment, with the most serious dysfunction in the categories of work (55.36%), alertness behaviour (53.45%) and recreation and pastimes (45.20%).

CONCLUSION

Multiple chemical sensitivity is an important health care issue because it often includes serious dysfunction, is poorly understood by providers and poses extensive financial and treatment obstacles for those who experience it.

RELEVANCE TO CLINICAL PRACTICE

Persons with multiple chemical sensitivity seek medical treatment in a variety of contexts and informed providers can both avoid iatrogenic harm due to medical exposures and provide any possible treatment for the chemical sensitivities. Understanding the impact of the health condition is crucial to communicate with and treat persons who experience the sensitivities.

摘要

目的

研究自我报告有化学物质敏感(通常称为多重化学物质敏感)的人群的生活质量结果。

背景

多重化学物质敏感鲜为人知,专门从事其治疗的医疗服务提供者寥寥无几。这种治疗的缺乏以及化学物质的普遍存在,给经历这些敏感反应的人带来了严重的生活影响,如失业、经济损失、社会孤立甚至无家可归。

设计

调查。

方法

我们通过疾病影响量表,对254名自我认定为多重化学物质敏感的人进行了化学刺激物、症状以及与疾病相关的行为功能障碍的调查。

结果

在受访者中,被认为导致症状最多的化学物质是农药、甲醛、新油漆、新地毯、柴油废气、香水和空气清新剂。该样本中排名前五的症状是疲倦/无精打采、注意力难以集中、肌肉疼痛、记忆困难和长期疲劳。疾病影响量表的总体平均得分是25.25%,表明存在严重损害,其中工作(55.36%)、警觉行为(53.45%)以及娱乐和消遣(45.20%)方面的功能障碍最为严重。

结论

多重化学物质敏感是一个重要的医疗保健问题,因为它常常伴有严重的功能障碍,医疗服务提供者对此了解甚少,并且给经历这种情况的人带来了巨大的经济和治疗障碍。

与临床实践的相关性

多重化学物质敏感的患者在各种情况下寻求医疗治疗,知识渊博的医疗服务提供者既可以避免因医疗接触造成医源性伤害,又可以为化学物质敏感提供任何可能的治疗。了解健康状况的影响对于与经历这些敏感反应的患者沟通和治疗至关重要。

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