Bernardes Liliane Cristina Gonçalves, Maior Izabel Maria Madeira de Loureiro, Spezia Carlos Humberto, de Araujo Tereza Cristina Cavalcanti Ferreira
Coordenadoria Nacional para Integração da Pessoa Portadora de Deficiência, Secretaria Especial dos Direitos Humanos, Presidência da República, Brasília, DF, 70064-900.
Cien Saude Colet. 2009 Jan-Feb;14(1):31-8. doi: 10.1590/s1413-81232009000100008.
The purpose of this article is to analyze the dilemma of allocation of public funds to the healthcare of people with disabilities in Brazil from a bioethical standpoint. The concept of disability and the legal framework are presented; the question of budgetary constraints and theoretical bioethics references about this issue are discussed; and the role of Bioethics of Protection and Bioethics of Intervention is stressed. It is concluded that, because of their vulnerability, people with disabilities should be protected by the state and funds must be allocated to guarantee their access to healthcare services. However, in spite of the existing legal basis, the actual destination of public funds to people with disabilities still depends on other factors, among others social and political participation of the disabled persons themselves in the negotiation of healthcare policies.
本文旨在从生命伦理的角度分析巴西公共资金分配给残疾人医疗保健所面临的困境。文中介绍了残疾概念和法律框架;讨论了预算限制问题以及关于此问题的理论生命伦理参考;强调了保护生命伦理和干预生命伦理的作用。得出的结论是,由于残疾人的脆弱性,国家应给予保护,必须分配资金以确保他们能够获得医疗保健服务。然而,尽管有现有的法律依据,但公共资金实际用于残疾人的情况仍取决于其他因素,其中包括残疾人自身在医疗保健政策谈判中的社会和政治参与度。