Tornay E
J Ren Care. 2007 Jul-Sep;33(3):115-8. doi: 10.1111/j.1755-6686.2007.tb00055.x.
The aim is to offer, via the use of a manual, information to the parents and kidney-transplanted children, which offers hope to all with advice and explanation of procedures, and in this way, to better inform the recipients. The guide offers information to kidney-transplanted children and their caregivers, with clear instructions, simple vocabularies and attractive drawings or illustrations. With this guide, children and youngsters learn measurements of self-care, know the details of diet, recognize their physical limits and are informed about their necessary medication in order that the medication can be taken with minimal side effects. The parents find information to take care of a child who is transplanted and so has a second opportunity to enjoy life. This permits high hopes that self-confidence and self-esteem will be built up from advice and better information about how to get the best treatment. The quality of life recovered by the children and family is the best reward that can be given to the anonymous donors, who through the transplant, offer a possible reality for those patients who benefit from the chance to live again.
目的是通过使用一本手册，向父母和肾移植儿童提供信息，手册为所有人带来希望，阐明手术流程并给予建议，从而让接受者能更好地了解情况。该指南为肾移植儿童及其护理人员提供信息，有清晰的说明、简单的词汇以及吸引人的图片或插图。借助这本指南，儿童和青少年学会自我护理的方法，了解饮食细节，认识自身身体极限，并知悉所需药物，以便用药时副作用最小。父母能找到照顾移植儿童的相关信息，从而孩子有机会再次享受生活。这让人满怀希望，相信通过关于如何获得最佳治疗的建议和更充分信息，孩子能建立自信和自尊。儿童和家庭恢复的生活质量是给予匿名捐赠者的最好回报，捐赠者通过移植手术，为那些受益于重获生命机会的患者创造了可能。
