Erdner A, Andersson L, Magnusson A, Lützén K
Ersta Sköndal University College, Stockholm, Sweden.
J Psychiatr Ment Health Nurs. 2009 Feb;16(1):54-60. doi: 10.1111/j.1365-2850.2008.01329.x.
The purpose of this study was to explore views of life among people with long-term mental illnesses. The participants' possible cognitive inability to express such views dictated a research design that was both fit for purpose and respectful of their integrity. The study, based on an ethnographic framework, involved photographs and interviews with five women and three men. The participants were the photographers, as well as the authors of their own narratives, and the photographs served as a starting point for the interviews. The interview material was analysed in terms of the phases of interpretation. Four main themes were identified: 'thoughts about God and the meaning of life and death', 'the meaning of relationships with others', 'how animals give meaning to life without demands' and 'the symbolic bearing of objects on life'. These four themes represent key existential issues among people with long-term mental illnesses, but they lack confidants to share or discuss these matters with.
本研究的目的是探索患有长期精神疾病的人群对生活的看法。参与者可能存在的认知障碍使其无法表达这些观点,这决定了研究设计既要符合目的,又要尊重他们的人格完整性。该研究基于人种志框架,涉及对五名女性和三名男性的摄影及访谈。参与者既是摄影师,也是自身叙述的作者,照片作为访谈的起点。访谈材料依据解读阶段进行分析。确定了四个主要主题:“对上帝以及生与死意义的思考”“与他人关系的意义”“动物如何在无需求的情况下赋予生命意义”以及“物品对生活的象征意义”。这四个主题代表了患有长期精神疾病的人群中的关键生存问题,但他们缺乏可以与之分享或讨论这些问题的知己。