Scheibler Fülöp, Scheike Inger M, Dintsios Charalabos-Markos
Institut für Qualität und Wirtschaftlichkeit im Gesundheitswesen (IQWiG), Köln.
Z Evid Fortbild Qual Gesundhwes. 2008;102(6):373-7. doi: 10.1016/j.zefq.2008.07.017.
In health care, patient participation takes place on different levels. This article gives two examples of possible patient involvement on the micro level (evidence-based patient information and shared decision making) and, as examples for the macro level, a description of the opportunities for patient participation in decision making processes of the Federal Joint Committee (G-BA) and the Institute for Quality and Efficiency in Health Care in Germany (IQWiG). Future possibilities to enhance patient participation on the micro level include more rigorous evaluation of patient information and decision aids. The involvement of professional caregivers in the development of these tools might improve their use in health care. On the macro level, participation of patients in decision making should be further established (e.g., by increasing their resources). The involvement of patients in the weighting of patient-important outcomes before health technology assessment takes place could be a further enhancement.
在医疗保健领域，患者参与发生在不同层面。本文给出了微观层面患者可能参与的两个例子（循证患者信息和共同决策），作为宏观层面的例子，描述了患者参与德国联邦联合委员会（G-BA）和德国医疗质量与效率研究所（IQWiG）决策过程的机会。未来在微观层面加强患者参与的可能性包括对患者信息和决策辅助工具进行更严格的评估。专业护理人员参与这些工具的开发可能会提高它们在医疗保健中的使用。在宏观层面，应进一步确立患者在决策中的参与（例如，通过增加他们的资源）。在卫生技术评估之前让患者参与对患者重要的结果的权重确定可能是进一步的改进。
