Robinson Carole A, Pesut Barbara, Bottorff Joan L, Mowry Andrea, Broughton Sandra, Fyles Gillian
1 Faculty of Health and Social Development, UBC Okanagan , Kelowna British Columbia., 2 School of Nursing, UBC Okanagan , Kelowna British Columbia., 3 Centre for Healthy Living and Chronic Disease Prevention, UBC Okanagan , Kelowna British Columbia., 4 Palliative Care Services, Peterborough Regional Health Centre , Peterborough, Ontario, Canada ., 5 BC Cancer Agency-Centre for the Southern Interior , Kelowna, British Columbia., 6 Pain & Symptom Management/Palliative Care Program, BC Cancer Agency-Centre for the Southern Interior , Kelowna, British Columbia.
J Palliat Med. 2009 Feb 13. doi: 10.1089/jpm.2008.0228.
Abstract Background: Access to integrated, palliative care regardless of location of residence is a palliative care standard yet we know such access is limited for those living in rural and remote settings. As a beginning step in the development of research aimed at informing policy and program development, a comprehensive review of the state of knowledge regarding palliative care in rural contexts is required. Purpose: To identify, evaluate and synthesize the published literature on rural palliative care. Design: Comprehensive review. Methods: Computer searches were conducted on PubBMed, ISI Web of Science, PsycInfo, CINAHL, and Ageline using the search terms palliative care, hospice, terminal care, end-of-life care, end-of-life, and rural or remote. Results: One hundred fifty-eight studies were retrieved. After screening using relevance and quality criteria, 79 studies were included in the review. Studies were grouped by subject matter into one of three categories: patient and caregiver perspectives; professional attitudes, knowledge and practice issues; and health care services. Conclusion: The body of research literature is small and eclectic, which means there is little strong evidence to inform palliative policy and service development in rural settings. Coordinated programs of research are clearly required to develop a body of knowledge that is adequate to support effective service and policy development.
摘要 背景：无论居住地点如何，都能获得综合姑息治疗是一项姑息治疗标准，但我们知道，对于生活在农村和偏远地区的人来说，这种获得途径是有限的。作为旨在为政策和项目制定提供信息的研究发展的第一步，需要对农村姑息治疗的知识状况进行全面综述。目的：识别、评估和综合已发表的关于农村姑息治疗的文献。设计：全面综述。方法：使用搜索词“姑息治疗”“临终关怀”“终末期护理”“生命末期护理”“生命末期”以及“农村或偏远地区”在PubMed、ISI科学网、PsycInfo、CINAHL和Ageline上进行计算机检索。结果：检索到158项研究。在根据相关性和质量标准进行筛选后，79项研究被纳入综述。研究按主题分为三类之一：患者和照顾者视角；专业态度、知识和实践问题；以及医疗保健服务。结论：研究文献数量少且内容繁杂，这意味着几乎没有有力证据为农村地区的姑息治疗政策和服务发展提供参考。显然需要开展协调一致的研究项目，以积累足够的知识来支持有效的服务和政策制定。
