1 Medical School, Australian National University, Canberra, ACT, Australia.
2 HammondCare, Sydney, NSW, Australia.
Palliat Med. 2017 Dec;31(10):895-912. doi: 10.1177/0269216316685234. Epub 2017 Jan 20.
End-of-life care must be relevant to the dying person and their family caregiver regardless of where they live. Rural areas are distinct and need special consideration. Gaining end-of-life care experiences and perspectives of rural patients and their family caregivers is needed to ensure optimal rural care.
To describe end-of-life care experiences and perspectives of rural patients and their family caregivers, to identify facilitators and barriers to receiving end-of-life care in rural/remote settings and to describe the influence of rural place and culture on end-of-life care experiences.
A systematic literature review utilising the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines.
Four databases (PubMed, CINAHL, Scopus and Web of Science) were searched in January 2016, using a date filter of January 2006 through January 2016; handsearching of included article references and six relevant journals; one author contacted; pre-defined search terms and inclusion criteria; and quality assessment by at least two authors.
A total of 27 articles (22 rural/remote studies) from developed and developing countries were included, reporting rural end-of-life care experiences and perspectives of patients and family caregivers. Greatest needs were informational (developed countries) and medications (developing countries). Influence of rural location included distances, inaccessibility to end-of-life care services, strong community support and importance of home and 'country'.
Articulation of the rural voice is increasing; however, there still remain limited published rural studies reporting on patient and family caregivers' experiences and perspectives on rural end-of-life care. Further research is encouraged, especially through national and international collaborative work.
无论患者和他们的家庭照顾者居住在哪里，临终关怀都必须与他们相关。农村地区是独特的，需要特别考虑。为了确保农村地区的护理达到最佳水平，需要了解农村患者及其家庭照顾者的临终关怀体验和观点，以确定农村/偏远地区接受临终关怀的促进因素和障碍，并描述农村环境和文化对临终关怀体验的影响。
描述农村患者及其家庭照顾者的临终关怀体验和观点，确定农村/偏远地区接受临终关怀的促进因素和障碍，并描述农村环境和文化对临终关怀体验的影响。
采用系统综述 Preferred Reporting Items for Systematic Reviews and Meta-Analyses 指南进行系统文献回顾。
2016 年 1 月，使用日期过滤器（2006 年 1 月至 2016 年 1 月），在 4 个数据库（PubMed、CINAHL、Scopus 和 Web of Science）中进行了搜索；对纳入文章的参考文献和六本相关期刊进行了手工搜索；联系了一位作者；预定义了搜索词和纳入标准；并由至少两名作者进行了质量评估。
共纳入了来自发达国家和发展中国家的 27 篇文章（22 篇为农村/偏远地区研究），报告了农村地区临终关怀患者和家庭照顾者的体验和观点。最大的需求是信息（发达国家）和药物（发展中国家）。农村地理位置的影响包括距离、临终关怀服务的不可及性、强大的社区支持以及家庭和“乡村”的重要性。
农村声音的表达正在增加；然而，仍然有有限的发表的农村研究报告农村患者及其家庭照顾者对农村临终关怀的体验和观点。鼓励进行进一步的研究，特别是通过国家和国际合作工作。
