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[临终时的告知真相与预先护理计划]

[Truth telling and advance care planning at the end of life].

作者信息

Hu Wen-Yu, Yang Chia-Ling

机构信息

Department of Nursing, College of Medicine, National Taiwan University, and National Taiwan University Hospital, Taipei, Taiwan, ROC.

出版信息

Hu Li Za Zhi. 2009 Feb;56(1):23-8.

Abstract

One of the core values in terminal care the respect of patient 'autonomy'. This essay begins with a discussion of medical ethics principles and the Natural Death Act in Taiwan and then summarizes two medical ethical dilemmas, truth telling and advance care planning (ACP), faced in the development of hospice and palliative care in Taiwan. The terminal truth telling process incorporates the four basic principles of Assessment and preparation, Communication with family, Truth-telling process, and Support and follow up (the so-called "ACTs"). Many experts suggest practicing ACP by abiding by the following five steps: (1) presenting and illustrating topics; (2) facilitating a structured discussion; (3) completing documents with advanced directives (ADs); (4) reviewing and updating ADs; and (5) applying ADs in clinical circumstances. Finally, the myths and challenges in truth telling and ADs include the influence of healthcare system procedures and priorities, inadequate communication skills, and the psychological barriers of medical staffs. Good communication skills are critical to truth telling and ACP. Significant discussion about ACP should help engender mutual trust between patients and the medical staffs who take the time to establish such relationships. Promoting patient autonomy by providing the opportunity of a good death is an important goal of truth telling and ACP in which patients have opportunities to choose their terminal treatment.

摘要

临终关怀的核心价值观之一是尊重患者的自主权。本文首先讨论了医学伦理原则和台湾的《自然死亡法》,然后总结了台湾临终关怀与缓和医疗发展中面临的两个医学伦理困境,即告知真相和预立医疗照护计划(ACP)。临终告知过程包含评估与准备、与家属沟通、告知真相过程以及支持与跟进这四项基本原则(即所谓的“ACTs”)。许多专家建议通过遵循以下五个步骤来实施预立医疗照护计划:(1)提出并阐释主题;(2)推动结构化讨论;(3)填写预立医疗指示(ADs)文件;(4)审查并更新预立医疗指示;(5)在临床情境中应用预立医疗指示。最后,告知真相和预立医疗指示中的误区与挑战包括医疗系统程序和优先事项的影响、沟通技巧不足以及医护人员的心理障碍。良好的沟通技巧对于告知真相和预立医疗照护计划至关重要。关于预立医疗照护计划的深入讨论应有助于在患者与花时间建立这种关系的医护人员之间建立相互信任。通过提供善终的机会来促进患者自主权是告知真相和预立医疗照护计划的一个重要目标,在这个过程中患者有机会选择他们的临终治疗。

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