Gijsberts M J H E, van der Steen J T, Muller M T, Deliens L
EMGO Instituut, afdeling verpleeghuisgeneeskunde, VU medisch centrum, Van der Boechorststraat 7, 1081 BT Amsterdam.
Tijdschr Gerontol Geriatr. 2008 Dec;39(6):256-64. doi: 10.1007/BF03078164.
Every year more than 20,000 people with dementia die in Dutch nursing homes and this number steadily increases. Therefore, the importance of good end-of-life care for these patients including physical, psychosocial and spiritual care is evident. Although the training standards for Dutch nursing home physicians and nurses share a common standard, the philosophy of a nursing home may affect end-of-life care strategies for the residents. We compared end of life of nursing home residents with dementia in two anthroposophic and two traditional nursing homes in a retrospective study using the most specific instrument available: the End-of-Life in Dementia scales (EOLD). Family caregivers completed the EOLD questionnaire. There was no difference in mean Satisfaction With Care scale scores between both types of nursing homes: 32.9 (SD 4.3) and 31.6 (SD 4.9), respectively. The anthroposophic nursing homes had significant higher scores on the 'Symptom Management' ((32.9 (SD 7.5) versus 26.9 (SD 9.5)), and 'Comfort Assessment in Dying' scales (34.0 (SD 3.9) versus 30.8 (SD 5.8)) and on its subscale Well Being (7.7 (SD 1.2) versus 6.7 (SD 2.1)). Our results suggest that death with dementia was more favourable in anthroposophic nursing homes than in regular homes. The results inform further prospective studies on nursing homes how this and other philosophies are translated into daily nursing home practice, including decision making in multi-disciplinary teams, family consultation, and complementary non-pharmacological therapies.
每年有超过20000名患有痴呆症的人在荷兰养老院死亡,且这一数字在稳步上升。因此,为这些患者提供包括身体、心理社会和精神护理在内的优质临终关怀的重要性不言而喻。尽管荷兰养老院医生和护士的培训标准有共同之处,但养老院的理念可能会影响其对居民的临终关怀策略。在一项回顾性研究中,我们使用了最具体的可用工具——痴呆症临终量表(EOLD),比较了两家采用人智学理念的养老院和两家传统养老院中患有痴呆症的居民的临终情况。家庭护理人员完成了EOLD问卷。两类养老院在护理满意度量表平均得分上没有差异,分别为32.9(标准差4.3)和31.6(标准差4.9)。人智学理念的养老院在“症状管理”((32.9(标准差7.5)对26.9(标准差9.5))、“临终舒适度评估”量表(34.0(标准差3.9)对30.8(标准差5.8))及其子量表“幸福感”(7.7(标准差1.2)对6.7(标准差2.1))上得分显著更高。我们的研究结果表明,在人智学理念的养老院中,痴呆症患者的死亡情况比在普通养老院中更有利。这些结果为进一步关于养老院的前瞻性研究提供了信息,即这种理念和其他理念如何转化为养老院的日常实践,包括多学科团队的决策、家庭咨询和补充性非药物治疗。