Verhoef M J, Trojan L, Armitage G D, Carlson L, Hilsden R J
Departments of Community Health Sciences and Medicine, University of Calgary, Alberta, Canada.
Chronic Dis Can. 2009;29(2):80-8.
Many cancer patients seek complementary therapies (CTs) for cancer management; however, relatively little is known about patients' CT information seeking behaviour. Therefore, we assessed: 1) cancer patients' use of the types and sources of CT information; 2) their information preferences; and 3) their understanding of the phrase "scientific evidence or proof that a therapy works." We collected data from 404 patients attending the Tom Baker Cancer Centre (TBCC) in Calgary and 303 patients calling the Cancer Information Service (CIS) helpline. In most cases, patients wanted information on the safety of CTs, how CTs work and their potential side effects. Physicians and conventional cancer centres were the most desired sources of CT information, but relatively few patients obtained information via these sources. Although patients were aware of the meaning of scientific evidence, they often used information based on non-scientific evidence, such as patient testimonials. The creation of a supportive care environment in conventional cancer treatment centres, by providing CT information, may help address cancer patients' concerns and alleviate some of the stress that may have been caused by the cancer diagnosis.
许多癌症患者寻求辅助疗法(CTs)来管理癌症;然而,对于患者寻求CT信息的行为了解相对较少。因此,我们进行了评估:1)癌症患者对CT信息类型和来源的使用情况;2)他们的信息偏好;3)他们对“疗法有效的科学证据或证明”这一表述的理解。我们收集了来自卡尔加里汤姆·贝克癌症中心(TBCC)的404名患者以及拨打癌症信息服务(CIS)热线的303名患者的数据。在大多数情况下,患者想要了解CT的安全性、CT的作用方式及其潜在副作用的信息。医生和传统癌症中心是患者最希望获取CT信息的来源,但相对较少的患者通过这些来源获得信息。尽管患者了解科学证据的含义,但他们经常使用基于非科学证据的信息,例如患者的推荐。在传统癌症治疗中心营造一个支持性护理环境,通过提供CT信息,可能有助于解决癌症患者的担忧,并减轻癌症诊断可能带来的一些压力。