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十年后的公众信任与研究:自杰西·盖辛格去世后我们学到了什么?

Public trust and research a decade later: what have we learned since Jesse Gelsinger's death?

作者信息

Yarborough Mark, Sharp Richard R

机构信息

Center for Bioethics and Humanities, University of Colorado Denver, Mail Stop B 137, 13120 E. 19th Avenue, Aurora, CO 80045, USA.

出版信息

Mol Genet Metab. 2009 May;97(1):4-5. doi: 10.1016/j.ymgme.2009.02.002. Epub 2009 Feb 20.

DOI:10.1016/j.ymgme.2009.02.002
PMID:19285443
Abstract

Almost a decade has passed since the untimely death of Jesse Gelsinger. The reflections of Dr. Wilson and efforts made on a national scale to address various ethical issues in biomedical research provide an opportunity to consider what progress has been made in efforts to build and restore the public's trust in biomedical research. The restoration of public trust is especially critical in the aftermath of tragic events like Mr. Gelsinger's death and the authors note the need for greater emphasis on building public trust than has occurred to date in the broader biomedical research community.

摘要

自杰西·盖辛格 untimely death 至今已近十年。威尔逊博士的反思以及在全国范围内为解决生物医学研究中的各种伦理问题所做的努力,为思考在建立和恢复公众对生物医学研究的信任方面取得了哪些进展提供了契机。在像盖辛格先生去世这样的悲剧事件之后,恢复公众信任尤为关键,作者指出,在更广泛的生物医学研究界,需要比迄今为止更加重视建立公众信任。

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