Valeral L, Mauri C
Psicologo psicoterapeuta, Consigliere nazionale Società Italiana di Psiconcologia.
G Ital Med Lav Ergon. 2008 Jul-Sep;30(3 Suppl B):B37-9.
The family caregiver role is a vital element of home-based patient care. At home, the achievement of the care plan may depend on the physician's relationship with the patient's caregiving network. Caregivers often tolerate an incalculable emotional burden for their work. Although many enjoy a profound sense of benefit and get deep satisfaction in this role, sadness, guilt, anger, resentment, and a sense of inadequacy are also common and understandable reactions. Exhaustion, financial strain, disrupted usual activities, and continuous caregiving contribute to significant mental health morbidity, including anxiety and depression. Early recognition of caregiver distress, help to secure a trusting partnership between the physician and the patient-caregiver unit at the end of life. This paper give some suggestion coming from a decade of support to families during the end stage.
家庭照顾者的角色是居家患者护理的重要组成部分。在家庭中，护理计划的实现可能取决于医生与患者护理网络的关系。照顾者常常为了工作承受难以估量的情感负担。尽管许多人从这个角色中获得了深刻的益处和满足感，但悲伤、内疚、愤怒、怨恨和不足感也是常见且可以理解的反应。疲惫、经济压力、日常活动被打乱以及持续的照顾工作导致了包括焦虑和抑郁在内的严重心理健康问题。尽早识别照顾者的困扰，有助于在生命末期确保医生与患者-照顾者团队之间建立信任关系。本文给出了来自十年来对临终阶段家庭支持的一些建议。
