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[慢性病对伴侣的影响。一项探索性研究]

[Chronic disease impact on partners. An explorative study].

作者信息

Pacini G, Sarmiento I

机构信息

Colle di Val d'Elsa, Siena, Italy.

出版信息

G Ital Med Lav Ergon. 2008 Jul-Sep;30(3 Suppl B):B54-61.

PMID:19288778
Abstract

In the last years there has been a growing interest of researchers for themes dealing with chronic illness and issues related to that condition. Several authors have studied the difficulties caregivers have to cope with, especially when the patient's partner has this role. That condition would have both physical and psychological consequences, but its real effects seem to depend on a complex set of interacting elements. On the basis of these researches, in the current study we aimed to explore the influence of adult attachment and marital satisfaction on the impact that chronic illness can have on patient's partner and on his/her health-related quality of life. The sample is composed of 40 chronic renal failure patients' partner-caregivers. Each caregiver filled in a battery of tests for finding out the characteristics of adult attachment and marital satisfaction, health-related quality of life and the association between these variables and the impact of chronic illness on partners. Descriptive statistics, correlations and one-sample t test analysis have been performed. Results show a significant correlation between attachment style and caregiving burden; there are no gender differences in disease impact on caregiver. Moreover caregivers seem to have a worse quality of life in comparison to general population. Understanding caregiving can lead, at a future time, to planning specific interventions for both patients and partners, using a global and integrated approach that respects individuals and couples in their biologic, psychological and relational dimensions.

摘要

在过去几年中,研究人员对涉及慢性病及与该病症相关问题的主题越来越感兴趣。几位作者研究了照顾者所面临的困难,尤其是当患者的伴侣承担这一角色时。这种情况会产生身体和心理两方面的后果,但其实际影响似乎取决于一系列复杂的相互作用因素。基于这些研究,在本研究中,我们旨在探讨成人依恋和婚姻满意度对慢性病对患者伴侣及其健康相关生活质量影响的作用。样本由40名慢性肾衰竭患者的伴侣照顾者组成。每位照顾者填写了一系列测试,以了解成人依恋和婚姻满意度、健康相关生活质量的特征,以及这些变量之间的关联和慢性病对伴侣的影响。进行了描述性统计、相关性分析和单样本t检验分析。结果显示依恋风格与照顾负担之间存在显著相关性;疾病对照顾者的影响不存在性别差异。此外,与普通人群相比,照顾者的生活质量似乎更差。了解照顾情况未来可能会促使我们采用一种全面综合的方法,在生物、心理和关系层面尊重个体和夫妻,为患者及其伴侣规划具体干预措施。

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