Guo Liping, Jiang Yuping, Yatsuya Hiroshi, Yoshida Yoshitoku, Sakamoto Junichi
Young Leaders' Program, Nagoya University Graduate School of Medicine, Nagoya, Japan.
Can J Neurol Sci. 2009 Jan;36(1):51-9. doi: 10.1017/s0317167100006314.
To evaluate the effect of a group education program with personal rehabilitation for idiopathic Parkinson's disease (IPD).
A single-blind, randomized, controlled clinical trial, with a pre-test/post-test quasi-experimental design. Forty-four stable, non-demented patients with IPD were randomly assigned to an intervention group (n=23) and control group (n=21). Three group lectures on health education specific to IPD were delivered to the intervention group. The theme of lectures was "Not a lonely journey, as your friend, we---experts specializing in IPD---would love to join with you". Three domains of the management of IPD were mentioned: "How to manage your routine Meal, Moving and Mood after suffering from IPD" Each lecture was scheduled for 45 minutes (excluding breaks), and designed as an interactive dialogue rather than a traditional lecture. To strengthen the impact of the lectures, relevant information was published on a website: http://www.parkinsonism.cn/. Following the group lecture, individualized and tailored rehabilitation made up of 24 half-hour sessions over eight weeks were provided for the intervention group.
The program ran smoothly and IPD patients were satisfied with this program. After only eight weeks, the health-related quality of life (HRQOL) in the intervention group improved significantly (p<0.001). Patients and their caregivers in this group also reported their mood elevations following the program.
Group education combined with personal rehabilitation program appears to be a beneficial and practical intervention, not only complementing the medical treatment for IPD patients but also meeting the growing demand for long-term care.
评估针对特发性帕金森病（IPD）的团体教育项目结合个性化康复的效果。
采用单盲、随机、对照临床试验，采用前测/后测准实验设计。44例病情稳定、无痴呆的IPD患者被随机分为干预组（n = 23）和对照组（n = 21）。为干预组举办了三场关于IPD特定健康教育的讲座。讲座主题为“并非孤独之旅，作为您的朋友，我们——IPD专家——愿与您同行”。提到了IPD管理的三个方面：“患IPD后如何管理日常饮食、活动和情绪”。每场讲座安排45分钟（不包括休息时间），设计为互动对话而非传统讲座。为加强讲座的影响，相关信息发布在网站：http://www.parkinsonism.cn/ 。讲座结束后，为干预组提供了为期八周、由24个半小时课程组成的个性化定制康复训练。
该项目顺利开展，IPD患者对该项目满意。仅八周后，干预组的健康相关生活质量（HRQOL）就有显著改善（p < 0.001）。该组患者及其照料者也报告称项目实施后情绪有所改善。
团体教育结合个性化康复项目似乎是一种有益且实用的干预措施，不仅能补充IPD患者的药物治疗，还能满足对长期护理日益增长的需求。
