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拒绝向基因研究参与者提供个性化结果是否符合伦理道德?

Is it ethical to deny genetic research participants individualised results?

作者信息

Affleck P

机构信息

Leeds Institute of Molecular Medicine, St James's University Hospital, UK.

出版信息

J Med Ethics. 2009 Apr;35(4):209-13. doi: 10.1136/jme.2007.024034.

Abstract

This article examines a key ethical concern that has arisen in the work of the international research consortium GenoMEL (http://www.genomel.org) and that has relevance to all genetic research in humans. The question is whether it is ethical to deny research participants the opportunity to receive individualised genetic results obtained from the biological samples they provide. Where those results are of clinical importance, a "respect for persons" requirement would make the offering of those results imperative. However, where those results are of uncertain clinical value, the picture is less clear. This paper argues that researchers may not be ethically obliged to offer such results to their participants, because of competing ethical demands.

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