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Taking our obligations to research participants seriously: disclosing individual results of genetic research.

作者信息

Manolio Teri A

机构信息

National Human Genome Research Institute, National Institutes of Health, USA.

出版信息

Am J Bioeth. 2006 Nov-Dec;6(6):32-4; author reply W10-2. doi: 10.1080/15265160600935993.

DOI:10.1080/15265160600935993
PMID:17085403
Abstract
摘要

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Taking our obligations to research participants seriously: disclosing individual results of genetic research.认真对待我们对研究参与者的义务:披露基因研究的个体结果。
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When do genetic researchers have a duty to recontact study participants?基因研究人员何时有责任再次联系研究参与者?
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Questions, complexities, and limitations in disclosing individual genetic results.披露个体基因检测结果中的问题、复杂性和局限性。
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Disclosing genetic research results: examples from practice.披露基因研究结果:实践案例
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Letting the gene out of the bottle: a comment on returning individual research results to participants.让基因走出“瓶子”:关于向参与者反馈个体研究结果的评论
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JCO Precis Oncol. 2018;2. doi: 10.1200/po.17.00250. Epub 2018 Apr 16.
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Return of individual genetic results in a high-risk sample: enthusiasm and positive behavioral change.高风险样本中个体遗传结果的反馈:热情与积极的行为改变。
Genet Med. 2015 May;17(5):374-9. doi: 10.1038/gim.2014.110. Epub 2014 Aug 28.
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Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study.公众对个体基因研究结果返还的偏好:一项定性焦点小组研究的结果。
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Prospective biorepository participants' perspectives on access to research results.前瞻性生物样本库参与者对获取研究结果的看法。
J Empir Res Hum Res Ethics. 2009 Sep;4(3):99-111. doi: 10.1525/jer.2009.4.3.99.
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Mol Psychiatry. 2009 Apr;14(4):376-80. doi: 10.1038/mp.2008.144. Epub 2008 Dec 30.
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Am J Bioeth. 2008 Nov;8(11):36-43. doi: 10.1080/15265160802513093.
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