Lu Zxy-Yann Jane, Chen Wil-Lie, Chen Hai-Chiao, Ou Meei
Institute of Clinical & Community Health Nursing, National Yang-Ming University.
J Nurs Res. 2009 Mar;17(1):42-51. doi: 10.1097/JNR.0b013e3181999d88.
Irritable bowel syndrome (IBS) results in a poor quality of life and absenteeism due to unpredictable abdominal pain, diarrhea, and bloating. IBS has prevalence rates of approximately 6% to 22% in various countries, and more women than men are diagnosed with this disorder. This study explored how Taiwanese women with IBS gain knowledge about the disorder and studied their experiences in using alternative remedies. An ethnographic study design involving interviews and Internet online discussions was used. Women (18-45 years) either diagnosed with IBS or with self-reported symptoms that met the Rome II criteria were included. All interviews were transcribed verbatim and analyzed by the constant comparison method. Results showed that symptom pattern recognition was used most often by participants to interpret symptoms. The bodily practices of the IBS women followed Taiwanese gender norms, with bodily experiences being represented as a dialogue between the disordered body and the social body. Linking diarrhea with social norms of female slenderness, IBS women applied cultural strategies to manage symptoms. The findings facilitate a partnership between healthcare professionals and IBS women, which can facilitate the development of an appropriate self-management manual, self-help groups, and Internet discussion groups to facilitate symptom management. It is hoped that this study will enhance nurse understanding of the traditional Chinese view of the body and the corresponding dietary practices used to harmonize the body's yin and yang. Although Asian women may resist Western medications due to their side effects, study results provide nurses with information on alternative therapies that may be more acceptable in the Asian context. In conclusion, the bodily experiences and practices of women with IBS are developed from personal cultural views of the body and gender norms.
肠易激综合征(IBS)会导致生活质量下降和旷工,原因是腹痛、腹泻和腹胀难以预测。IBS在各个国家的患病率约为6%至22%,被诊断出患有这种疾病的女性多于男性。本研究探讨了患有IBS的台湾女性如何了解该疾病,并研究了她们使用替代疗法的经历。采用了包括访谈和互联网在线讨论的人种学研究设计。纳入了年龄在18 - 45岁之间、要么被诊断患有IBS要么自我报告的症状符合罗马II标准的女性。所有访谈都逐字记录,并采用持续比较法进行分析。结果表明,参与者最常使用症状模式识别来解释症状。患有IBS的女性的身体实践遵循台湾的性别规范,身体体验被表现为患病身体与社会身体之间的对话。将腹泻与女性苗条的社会规范联系起来,患有IBS的女性应用文化策略来管理症状。这些发现促进了医疗保健专业人员与患有IBS的女性之间的合作关系,这有助于制定合适的自我管理手册、自助小组和互联网讨论小组以促进症状管理。希望本研究能增进护士对中国传统身体观以及用于调和身体阴阳的相应饮食习惯的理解。尽管亚洲女性可能因西药的副作用而抗拒,但研究结果为护士提供了在亚洲背景下可能更易接受的替代疗法的信息。总之,患有IBS的女性的身体体验和实践是从个人对身体的文化观念和性别规范发展而来的。