Behavioral Research Center, American Cancer Society, Atlanta, GA, USA.
Psychooncology. 2010 Apr;19(4):431-40. doi: 10.1002/pon.1576.
Although a growing body of research has documented the quality of life (QOL) of cancer survivors beyond the initial phase of the survivorship, similar knowledge about family caregivers of cancer survivors remains limited. Thus, the current study aimed: (a) to characterize the multidimensional aspects of the QOL of family caregivers of cancer survivors at 2 years after the diagnosis and (b) to predict certain aspects of caregivers' QOL by their demographic and caregiving characteristics.
A total of 1635 caregivers of cancer survivors participated in the nationwide Quality of Life Survey for Caregivers. Multidimensional aspects of QOL were assessed, including mental and physical health, as well as psychological adjustment and spirituality at 2 years post-diagnosis of their relatives' cancer.
Family caregivers reported normal levels of QOL after 2 years post-diagnosis, except that they were more likely to experience increased awareness of spirituality than do individuals who personally experience a chronic illness. In addition, caregivers' age and income and care-recipients' poor mental and physical functioning were significant predictors of their QOL at 2 years post-diagnosis.
The findings suggest that younger, relatively poor caregivers who are providing care to relatives with poor mental and physical functioning may benefit from interventions to help in their spirituality and psychological and physical adjustment, 2 years after the initial cancer diagnosis. In addition, older, relatively poor caregivers may benefit from programs to reduce the physical burden of caregiving. These findings have implications for advancing public health research and practice.
尽管越来越多的研究记录了癌症幸存者在生存初始阶段之后的生活质量(QOL),但对癌症幸存者家属照顾者的类似知识仍然有限。因此,本研究旨在:(a)描述癌症幸存者家属照顾者在诊断后 2 年内 QOL 的多维方面;(b)通过他们的人口统计学和照顾特征预测照顾者 QOL 的某些方面。
共有 1635 名癌症幸存者的照顾者参加了全国照顾者生活质量调查。在诊断后 2 年内,评估了 QOL 的多维方面,包括心理和身体健康,以及心理调整和精神信仰。
癌症幸存者的家属在诊断后 2 年内报告了正常的 QOL,除了他们比亲自经历慢性病的个体更有可能增加对精神信仰的认识。此外,照顾者的年龄和收入以及照顾对象的心理和身体功能较差是他们在诊断后 2 年内 QOL 的重要预测因素。
研究结果表明,在癌症初始诊断后 2 年内,年龄较小、相对贫困的照顾者为心理和身体功能较差的亲属提供护理,可能受益于干预措施,以帮助他们在精神信仰、心理和身体调整方面受益。此外,年龄较大、相对贫困的照顾者可能受益于减轻护理负担的计划。这些发现对推进公共卫生研究和实践具有重要意义。