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高功能自闭症儿童对父母压力、兄弟姐妹适应及家庭功能的影响。

The impact of children with high-functioning autism on parental stress, sibling adjustment, and family functioning.

作者信息

Rao Patricia A, Beidel Deborah C

机构信息

Kennedy Krieger Institute, Baltimore, MD 21211, USA.

出版信息

Behav Modif. 2009 Jul;33(4):437-51. doi: 10.1177/0145445509336427. Epub 2009 May 12.

Abstract

The article discusses a study conducted to investigate the impact of children with high-functioning autism (HFA) on parental stress, sibling adjustment, and family functioning; the study involves a sample of parents of 15 children with HFA and parents of 15 matched control children who completed questionnaires measuring the dependent variables. The results indicate parents of children with HFA experience significantly more parenting stress than parents of children with no psychological disorder, which was found to be directly related to characteristics of the children. The study further shows that the higher intellectual functioning in children with HFA does not compensate for the stress associated with parenting children with autism spectrum disorders. Because the intervention efforts directed at children with HFA will not eliminate the child's primary symptoms, treatment programs may need to address parental stress, which in turn will help optimize treatment outcome for the child and the family.

摘要

本文讨论了一项旨在调查高功能自闭症(HFA)儿童对父母压力、兄弟姐妹适应情况及家庭功能影响的研究;该研究选取了15名HFA儿童的父母以及15名匹配的对照儿童的父母作为样本,他们完成了测量相关因变量的问卷。结果表明,HFA儿童的父母比没有心理障碍儿童的父母承受着显著更多的育儿压力,且发现这与孩子的特征直接相关。该研究进一步表明,HFA儿童较高的智力功能并不能弥补与患有自闭症谱系障碍儿童的养育相关的压力。由于针对HFA儿童的干预措施无法消除孩子的主要症状,治疗方案可能需要解决父母的压力问题,这反过来将有助于优化孩子和家庭的治疗效果。

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